Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? In this article David Steensma, MD FACP at the Dana-Farber Cancer Institute and Harvard Medical School, Boston, Massachusetts USA discusses how to incorporating the Patient’s Voice into MDS Care and Research. Measuring quality of life: how to capture […]
Read full story
Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? Print this article By Raqeebah Agberemi. Myelodysplastic Syndromes (MDS) are a wide range of disorders which affect the functionality of the bone marrow. Thus, blood cells such as red blood cells, white blood cells and platelets may be affected. […]
Read full story
On Thursday 22nd of November MDS UK was represented at a bone marrow donor drive at RAF Coningsby alongside the bone marrow donor charity, DKMS. The event was prompted by the husband of Emma Sheldon, Adrian Cooper, following his wife’s diagnosis of MDS. As a great number of patients will know, the initial emotions that […]
Read full story
Read all about: Patient’s Stories: Kes Grant ‘Coping with long stays in hospitals…’; Andrew Scott Married to MDSDS; Tilly Tilbrook ‘How I felt about losing my hair…’; Christina Fowler ‘Decisions, decisions…’ Research: Prof D Wiseman Chronic Myelomonocytic Leukaemia (CMML), Prof D Steensma, Measuring quality of life; Prof T Chevassut The effects of vitamin C, Raqeebah […]
Read full story
Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? Print this article In this article Dr Timothy Chevassut, Consultant Haematologist at the Royal Sussex County Hospital, Brighton, looks at the benefits of Vitamin C in the treatment of MDS. Linus Pauling greatest discovery Not many people will […]
Read full story
Research FOR PatientsFor an informed and empowered opinionand an improved consultationHave you made your clinical paper accessible yet? By Prof. David Bowen In order to develop new drugs to treat MDS, clinical trials are mandatory, typically testing the new drug against the treatment that is considered to be the standard at that time. However patients […]
Read full story
MDS is a rare form of blood cancer Annually 2,240 patients in the UK are diagnosed with myelodysplastic syndromes (MDS) On October 25 we marked MDS World Awareness Day to raise public awareness of myelodysplastic syndromes (MDS) and its symptoms. We joined forces with UK local and national radio stations 11 interviews 130 minutes of […]
Read full story
By Russell Cook, runner, ex-MDS Patient and Deputy Chairman Trustee & Director of MDS UK Patient Support Group Sunday 14 October saw MDS UK represented at the iconic Cabbage Patch 10 mile race. You are probably wondering why it’s got such a funny name! Well, it’s named after the Cabbage Patch Pub in Twickenham, a […]
Read full story
Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? Print this article In 2012, MDS UK Patient Support Group started a research to assess the needs of patients suffering from MDS in the UK. To date, this is the largest UK-specific research ever conducted focusing exclusively on […]
Read full story
Why are we campaigning to Make Blood Cancer Visible? September is blood cancer awareness month and we are working together to #MakeBloodCancerVisible. Blood cancer affects 240,000 adults and children in the UK and claims more lives each year than either breast or prostate cancer. Yet, blood cancer does not get the priority and recognition it […]
Read full story