We're here to support MDS and CMML patients, their families and caregivers.
If you're struggling to understand a diagnosis or treatment plan, or perhaps you're unsure of next steps or how you move forward, please do get in touch.
By Phone or Email
- Call our helpline on 020 7733 7558 - Monday to Friday from 9am until 5pm
- Email us at email@example.com
- Become a member to access all of our services, through our Membership page (membership is free).
All your calls and emails are completely confidential and will be answered by people who know all about MDS & CMML. Our charity has been running since 2008 and we've helped thousands of people like you, so please reach out.
If you want to write to us, we're located in The Fuel Tank, Deptford
MDS UK Patient Support Group
The Fuel Tank
Become a Member
If you'd like to become a member to access all of our services, please join the MDS UK Patient Support Group through our Membership page
If you're a clinician, working with MDS patients, we can provide you with materials and information to share with your patients that can help them understand MDS and it's treatments. Please do get in touch, through our page Contact Us - Clinical Staff
Join our online Chat Forum
If you'd like to connect with our online community you could visit our Forum. You’ll find a wealth of information posted there by other members of our community: There are personal stories about their MDS & CMML experiences and lots of information on MDS types and treatments.
Fundraising & Donations
We are able to run the MDS UK Patient Support Group thanks to donations from individuals and businesses and from fundraising events, grants and memorial donations from families who sadly lost a loved one to MDS & CMML. If you'd like to fundraise for us, please contact our Fundraising Team firstname.lastname@example.org.
Tell Us How We're Doing
Your feedback is so valuable when assessing our services. We want to make sure we're focusing on the things that our members need. A couple of minutes of your time will help us immensely, so please complete our survey to let us know how we're doing. Complete the survey now! You can do this as many times as you like to give feedback about any service we deliver.
We're on Facebook. We have a members only private group where you can connect directly with fellow MDS & CMML patients, families and caregivers, or you can follow our public Facebook page for news and information about MDS & CMML.