On May 5th 2023, the National Institute for Health and Care Excellence (NICE) confirmed their decision not to approve Evusheld for use on the NHS in the UK. This means that, currently, Evusheld will not become available on the NHS in the UK.

We want to thank Kulwinder Aujla, Claire Philpott, Andrew Humphries, and Ashleigh Venables for their wonderful fundraising efforts for MDS UK last month. Completing the 2023 London Marathon and Glasgow Kiltwalk (despite the rain!) is truly amazing. Find out more and follow their links to Donate.

The NHS website has updated information from March 2023 on Covid-19 treatments for those at highest risk. Find out what the key changes are for patients with MDS, CMML, or people who have undergone a stem cell transplant.

The Joint Committee on Vaccination and Immunisation (JCVI) has confirmed its advice for a 2023 spring coronavirus (COVID-19) booster programme offering a vaccine top-up for over-75s, immunosuppressed and residents in care homes for older adults.

The APPG for Vulnerable Groups to Pandemics UK Inquiry has released their report this month (March 2023) into the Forgotten 500k Immunocompromised Patients.

The 17th International Congress on Myelodysplastic Syndromes (MDS 2023) will take place from 3-6 May 2023 in Marseille, France. Come to the Congress in Marseille, where international MDS experts will present and discuss the recent advances in myelodysplastic syndromes. Find out more and how to register (earlybird rates until March 7 2023).

‘What my body has taught me’ is a poem by Marianne Elliot, sent in by the wonderful Reverend Kes Grant who has lived with MDS for many years.

Dedicate a star in memory of a loved one on the MDS UK Christmas Tree.

Gary Fielding, will be competing in the Cardiff Bay 10K this March to remember his grandad, Stanley Morris, raise awareness of MDS and raise funds for MDS UK Patient Support Group. Gary, who lives in Cardiff now, grew up in Blackburn, Lancashire where he spent a lot of time with his grandfather Stanley.  Stanley’s MDS diagnosis took a long time and he was diagnosed at the age of 90. Donate via Gary’s JustGiving page. Find out more.