We wanted to you be the first to hear that registration is now open on our iconic London to ParisTour de France Challenge for 2020! Taking place on 15 – 19 July 2020, this incredible adventure is our most popular cycling challenge and it’s easy to see why – with the the finale of the world’s greatest cycle race awaiting […]
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Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? By Bettina Ryll My husband’s diagnosis with melanoma and our struggle to access effective therapy challenged what I had learnt about medical research. I have since founded a patient network, becoming a vocal advocate for patient- centric drug […]
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MDS UK does not receive any other types of grants or assistance from Government or Trusts. We need funds to offer patients these services free of charge:
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The latest MDS UK Patient and Family Forum took place in Harrogate on Friday 22nd March. It was an invaluable opportunity for those affected by MDS to hear about the latest developments in MDS research and treatment. The meeting was open to MDS patients and their guests, as well as clinical staff. Patients and their families […]
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Currently, several new drugs are being tested in clinical trials, aiming at improving the treatment of haematologic malignancies (HM). These trials, however, measure different results – also called treatment response, or outcomes – which makes it difficult to compare and combine all this information. Lars Bullinger (Charité Hospital in Berlin) makes the following observations: “For […]
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Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? The Institute of Cancer Research, London, one of the world’s most influential cancer research organisations, has published an in-depth analysis about the discovery and access of innovative cancer drugs. Read the full report Haematological cancers have seen dramatic […]
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Being diagnosed with myelodysplastic syndrome (MDS) can be a shock, particularly when you may never have heard of it. MDS UK has now produced a new edition of the MDS patient booklet, created in cooperation with our colleagues from Leukaemia Care and Bloodwise. At MDS UK, we felt there was an urgent need to revise the […]
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Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? Vidaza and Azacitidine are the same drug Azacitidine is the official generic and non-proprietary name given to the drug active ingredient while Vidaza is its trade name. The drug is widely available in the UK for the treatment […]
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Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? Cell therapies, sometimes called “living therapies”, are an especially promising and rapidly growing area of cancer research. One approach that’s been pioneered by Memorial Sloan Kettering researchers, led by investigator Michel Sadelain, is called CAR-T cell immunotherapy. This […]
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The MDS UK Committee is pleased to welcome two new members to the charity team: Lizzie Marshall, and Chris Fryer. Both Lizzie and Chris have experience in the Non-Profit and Charity Sector. Lizzie is a trainee psychotherapist with a background in the performing arts. She works supporting vulnerable people with learning difficulties alongside her new […]
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