MDS Latest News

MDS World Awareness Day 2023

Get involved and support MDS World Awareness day on October 25th 2023 on behalf of MDS patients globally! There are lots of ways you can show your support; whether it’s wearing one of our T-shirts for the day, sharing vital information about MDS signs and symptoms through social media, or by donating to MDS UK.  Whatever you can do will go towards improving the lives of MDS patients worldwide.

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Defend against Neutropenic Sepsis

Neutropenic sepsis is a life-threatening condition that needs urgent treatment. If you or your caregiver suspect Neutropenic Sepsis, contact your medical team for advice. If it is out-of-hours, treat it as an medical emergency and call 999 immediately. Read the signs and symptoms here. Even very slight symptoms may require urgent treatment and must not be ignored as infections can develop rapidly.

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Support Joe Thomas running 103 miles for MDS UK!

On the 5th August 2023 Joe will be attempting an utterly awesome challenge, the North Downs Way 100, a 103 mile (yes 103 mile, 167km!) ultramarathon to raise awareness of and money for MDS UK. Please Donate to support Joe Thomas in his incredible ultramarathon.

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Covid-19 Treatment Update

Those of you who have been told you are eligible for Covid treatments, should you test positive for Covid, should have received a recent NHS notification from Sir Stephen Powis […]

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‘CMML Diagnosis & Treatment’ – a presentation by consultant Dr. Daniel Wiseman

Dr Daniel Wiseman is an Honorary Consultant Haematologist at The Christie, NHS Foundation Trust, Manchester, and has great expertise in treating patients with CMML (Chronic Myelomonocytic Leukemia). This is a recording of a Zoom presentation he gave to the MDS UK Patient Support Group called  ‘Perspectives on CMML: Diagnosis & Treatment.’  Following the presentation, there are Q&As between Dr. Wiseman and a group of patients. 

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Need help with Zoom? Get free support from AbilityNet

We host online Patient Support Meetings and Specialist Speaker Meetings with leading experts in MDS and CMML. With the transition to Zoom, we know that some people may need help adapting to this technology. That’s why we’ve linked up with AbilityNet, a charity that provides IT support and guidance, including support with Zoom. Find out more.

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