The UK MDS Forum is a UK specialist group of haematologist, which works extensively with other MDS experts worldwide. Its haematologists are MDS experts and have extensive experience treating MDS […]

We are always looking for enthusiastic new volunteers to help with various aspects of our expanding patient services Have you or your loved one benefited from helpful information, support, or […]

We are excited to announce that we have free places for the Brighton Marathon Weekend 2023! Two great running events are taking place on Sunday 2nd of April 2023: the […]

Developed with clinical leaders, the proposals – supported by NHS staff as well as patient groups and cancer charities – aim to simplify and update cancer standards, based on the […]

A 3rd dose and booster dose (4th dose) of the coronavirus (COVID-19) vaccine is being offered to people aged 12 and over who had a severely weakened immune system when […]

Dear MDS patients, At the end of February we sent out a postal letter to all patients without internet access. The postal letter included the latest Covid instructions. We include […]

Sajid Javid announced today (03/03/22) that Lateral Flow Tests and PCR tests will remain free of charge for vulnerable patients after 1st April 2022. All blood cancer charities are now […]

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

Getting your fourth vaccine Some patients categorised as CEV (clinically extremely vulnerable) were sent appointment letters for a fourth vaccine in December, but when our patient representative for Scotland (Maureen) […]