Get involved

MDS Patient Support

All our support services are provided by a handful of paid staff, supported by a small but dedicated team of Trustees and volunteers. We receive no government, NHS or pharmaceutical funding, and are reliant totally on donations, fundraising and gifts generously left to us in wills to continue with our work.

How you can help

If you feel able to support our work, by making a charitable donation, by fundraising for us or by leaving us a gift in your will, we promise that, by keeping our administrative costs to the minimum, the maximum amount of every pound raised goes directly into supporting patients and enabling crucial research to continue.

Make a charitable donation

Donations of any size make a big difference. Your generosity helps fund our helpline, our online support meetings, and vital medical research for those affected by MDS & CMML.

 

 

Take part in a Fundraising event

Join a MDS UK fundraising event! Choose your challenge: run, walk, cycle or make up your own event to support those affected by MDS and CMML. Together, we can make a difference.

 

Leave a gift in your will

Last year over a third of our life-changing work at MDS UK was supported with funds donated to us through gifts in Wills. We appreciate gifts of any size as, to a small charity like MDS UK, every few pounds can truly make a big difference. If you're interested in leaving a legacy gift have a look at our Gifts in Wills guide.

 

How we use funds & donations 

We provide essential support services

 

We are the only UK-based support group dedicated solely to informing, supporting, and empowering people affected by MDS & CMML. We provide a friendly, inclusive and understanding environment through:
  • Online Support Meetings, held regularly throughout the year, providing support for those living with or affected by MDS or CMML. Hosted by our Regional Ambassadors these meetings often feature top haematology consultants and clinical specialists with Q&A sessions.
  • Email newsletters and information with meetings, news and events.
  • A members-only private Facebook group of around 1,000 members.
  • General support and information via email: info@mdspatientsupport.org.uk and telephone: 020 7733 7558  - (Monday to Friday from 9am until 5pm).
  • Access to all our services via free membership to MDS UK.

We support research into MDS and CMML

In addition to the essential support services we have been providing to patients and families since 2009 we also support crucial research into MDS and CMML. We liaise with leading clinicians and academics in the field who are seeking ways to improve outcomes for patients, but, due to the rare nature of the diseases, can find it difficult to attract funds for their work. Wherever we can, we aim to help plug the funding gaps for these essential projects, ensuring research into MDS and CMML doesn’t fall at the first hurdle.

Thank you for considering raising funds for MDS UK

We have some wonderful people, patients, families and companies who raise funds for us in many different, amazing, simple or courageous ways. Thank you to everyone for all your efforts, support, encouragement and confidence in all we do, for and with patients and their families.