Become a member of MDS UK

Membership to the MDS Patient Support group is free and open to anyone in the UK who's been diagnosed with MDS, is caring for someone with MDS, or cares about someone with MDS. On joining, we’ll post you a copy of the MDS UK Patient Support handbook and you'll be set up to receive our newsletter and important MDS information by email. You'll also get access to many other benefits (see below).

What membership offers

Our Helpline
You can Contact Us for help and advice by telephone 9-5, Monday to Friday 020 7733 7558

Consultant Lists
We can provide you with a list of UK consultants specialising in MDS at specialist centres.

You can join our online Patient Support meetings with specialist speakers, (e.g.haematology consultants or Clinical Nurse specialists), or attend national patient-to-patient support group meetings online for informal support, led by our Local Patient Support Ambassadors from around the UK.

Request our Booklets & Factsheets and access our website, which provides the most updated information on MDS, Patient Stories and current research.

Chat Forum
Take part in our Chat Forum and share your experiences as an MDS patient, write or respond to other people's messages.

There aren't that many of us with MDS

It's a rare disorder, so we can offer you a level of support and service you won't get elsewhere. Since 2008 our charity has provided information and support to thousands of people. To us, our members are part of our community and we are here to support your individual needs. If you prefer a more hands-off approach, that's fine too. Whatever you need.

What people say about the MDS Patient Support Group

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"Getting in touch with the MDS Patient Support Group is proving to be one of the most reassuring (and helpful) things we have done so far since my Dad was diagnosed."


"I have been to only 2 patient meetings so far and found them both very helpful. Meeting other MDS patients and sharing experiences with them has made a great difference to the way in which I deal with my own MDS and put my own current medical position in perspective."                            

I’m really glad I have connected with the MDS Support Group and am so thankful for all you do.”            Read more testimonials


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