Become a member of MDS UK

Membership is free and open to anyone in the UK affected by MDS or CMML including patients, family members, and caregivers.  We also welcome clinicians and medical professionals working in or conducting research into these rare diseases.
On joining, you'll be set up to receive our e-newsletter, and other relevant information by email (you can opt out if preferred).  You'll also have access to other member-only benefits (see below).

What membership offers

Access to our private Facebook Community
Whether you are a regular Facebook user or not, joining our private group gives you access to over 1,000 other members for peer-to-peer support and advice.  Most posts are responded to within an hour or two, and are monitored by MDS UK staff and volunteers.

Our Helpline
You can Contact Us for practical help and information by telephone 9 - 4, Monday to Friday, on 020 7733 7558. We are a very small team so you may need to leave us a voicemail, but we aim to return calls within 24 hours.  Please note we are unable to provide medical advice; your first contact for any medical queries should always be your clinical team or GP, or 111 for more urgent medical issues.

You will be invited to join our Online support meetings, which provide mutual support through contact with other members, and often feature speakers, (Haematology Consultants, Clinical Nurse specialists).  Where our Regional Ambassadors take turns in hosting these meetings, they are open to all members, regardless of where they are in the UK.  We recently introduced dedicated meetings for CMML members, and for  those who have been newly-diagnosed with MDS.

You'll receive our email newsletter with links to the latest MDS and CMML news and articles featured on our website, also details of new research and clinical trials as we are made aware of these.

Consultant Lists
We can signpost you to UK consultants specialising in MDS at specialist centres.

You can order printed copies of our Booklets & Factsheets. These are regularly reviewed and updated.

What people say about the MDS Patient Support Group

caret-down caret-up caret-left caret-right

"Getting in touch with the MDS Patient Support Group is proving to be one of the most reassuring (and helpful) things we have done so far since my Dad was diagnosed."


"I have been to only 2 patient meetings so far and found them both very helpful. Meeting other MDS patients and sharing experiences with them has made a great difference to the way in which I deal with my own MDS and put my own current medical position in perspective."                            

I’m really glad I have connected with the MDS Support Group and am so thankful for all you do.”            Read more testimonials


Free donations by shopping