Become a Member of the MDS UK Support Group

Membership is free and open to anyone in the UK affected by Myelodysplastic Syndromes (MDS) or Chronic Myelomonocytic Leukemia (CMML), including care-givers, family members and supporters. It’s easy to join, just fill in the form below. If you're outside the UK or if you can’t complete the form for any reason, please contact our membership team for help.

 

Benefits of free membership to the MDS UK Patient Support Group

 

  • A free hard copy of the MDS / CMML Patient Guide (on request): It's also available online as a downloadable pdf.
  • Email newsletters: Stay informed about the latest MDS & CMML news and developments.
  • Information about current and upcoming clinical trials for MDS and CMML
  • Access to online Support Meetings often with top UK MDS & CMML specialists talking on specific topics.
  • Access to our dedicated support line (Mon–Fri, 9 AM – 4 PM): 020 7733 7558
  • Entry to our private, UK-based MDS Facebook support community with over 1,000 members

Please note - membership is for UK residents only.

We can only accept members based in the UK. If you live outside the UK, please reach out to the MDS Foundation or the MDS Alliance for international support.

Apply for membership (UK residents only)

What people say about the MDS Patient Support Group

"Getting in touch with the MDS Patient Support Group is proving to be one of the most reassuring (and helpful) things we have done so far since my Dad was diagnosed."

 

"I have been to only 2 patient meetings so far and found them both very helpful. Meeting other MDS patients and sharing experiences with them has made a great difference to the way in which I deal with my own MDS and put my own current medical position in perspective."                            

“I’m really glad I have connected with the MDS Support Group and am so thankful for all you do.”            Read more testimonials

 

Your information and privacy

The information you provide helps us understand the MDS community, improve services, and raise awareness. Your personal details are securely held by MDS UK Patient Support and never shared with third parties. For more on data usage and protection rights, please refer to our privacy policy.