Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? Written by Janet Hayden – Lead Myeloid Clinical Nurse Specialist – King’s College Hospital MDS specialist nurse Janet Hayden gave two talks at our recent London Patient meeting at King’s College Hospital. The first one was a report about […]
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- SUB-TYPE OF MDS:Lower Risk MDS patients who require red cell transfusions but have not received Erythropoietin
- SEVERITY OF MDS: IPSS-R Very Low, Low or Intermediate Risk MDS
- NAME OF DRUG: Luspatercept
- SUB-TYPE OF MDS:Lower Risk MDS With Low Red Blood Cell Transfusion Burden
- SEVERITY OF MDS: IPSS-R Very Low, Low or Intermediate Risk MDS with <5% blasts
- NAME OF DRUG: Roxadustat
Exclusive photos given anonymously to MDS UK have captured the moment a mysterious red creature seemed to walk on the streets of London raising awareness of MDS on Blood Cancer Awareness Month. In one the photos, the red figure appears reading the newspaper on the train, while next to it a surprised Londoner makes desperate […]
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September is #BloodCancerAwarenessMonth. MDS UK Patient Support Group, together with colleagues from Anthony Nolan, Bloodwise, CLL Support Association, CML Support, Leukaemia Care, Lymphoma Action, Myeloma UK, and Waldenstrom’s Macroglobulinemia (WMUK), joined Make Blood Cancer Visible, an awareness campaign sponsored by Janssen UK. This year, the theme is “Connecting the dots”, aimed at encouraging people to […]
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Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? Written by Prof Jude Fitzgibbon, Prof Tom Vulliamy and Prof Inderjeet Dokal, Queen Mary University of London When a patient is first diagnosed with myelodysplastic syndrome (MDS), one of the most frequent questions posed is whether the disease […]
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Read all about: Patient’s Stories – Living with MDS: Bergit Kuhle: B12 meets MDS; Michael Bower; Bernard E Burke; Shareen Rouvray – Part 1; John and Sandra; Poetry by Kate Research – Progress in the diagnosis and treatment of MDS: European MDS Registry, Prof David Bowen; Familial/inherited MDS: rare but important to keep in mind, […]
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Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? by Niels Jensen What is precision medicine? In precision medicine the basic idea is to develop a treatment for the specific cancer of individual patients based on a genetic understanding of their disease. Precision medicine has also been […]
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Taking place on on Sunday 8 September 2019, the Great North Run is the largest half marathon in the world, taking place annually in North East England each September. And we have an amazing team running for MDS UK Patient Support Group: Kathleen Young Angela and Shari Stirling Lindsey Hall Tanya Ferris Alexander Bird Mike Leigh […]
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Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? The Harmony Alliance is a first-of-its-kind partnership of over 80 private and public organisations aiming at enabling better and faster treatments for patients with blood cancers such as MDS. Patient Organisations have a very active role in Harmony, and […]
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