MDS Latest News
Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? Patients with blood cancers such as leukaemia vary in their immune response to COVID-19 and can struggle to clear infection for very many weeks, according to new research published in Cancer Cell. By contrast, most patients with solid tumours, […]
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Advice on the Covid-19 vaccines for MDS Patients: Both Pfizer/BioNTech vaccine and Oxford University/AstraZeneca vaccines have been deemed safe for MDS patients. There are no known risks to cancer patients, or those on cancer treatment. Patients with an immune compromised system will still need to shield even after receiving the vaccine, as the protection may […]
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Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? An URGENT reminder about a slightly different type of questionnaire, run by the European big data project Harmony, which is doing research in haematological diseases, including MDS. The Harmony project WILL provide answers to complex research questions. This […]
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Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? TP53 gene mutations or chromosome 17 loss which results in TP53 deletion is present in up to 20% of MDS patients. Therapies for these patients have been relatively unsuccessful in delaying the progression of the disease. Emerging treatments […]
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Dear MDS UK members, We hope you have been coping as best as possible during this very difficult year for everyone. From the many phone calls and emails we have received since March 2020, we know how worried you have been about Covid-19. At the height of the pandemic, our phone line was open 24/7 […]
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Christmas Poem 2020 – by Kate D. A tradition of traditions that once a year consumes us with Nutcracker images, ginger and spice, stockings and F.C., a decorated tree. But to me, I look around and see the secret of Christmas… Beauty. Lights twinkling, a sparkle of glitter and idealised childhood Christmases. I could go […]
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Welcome to our “#20for20 Charity Shop”. This is the place where our amazing fundraisers are swapping things for donations! What an excellent way to support MDS UK! How does it work? To Donate: Take a look at the available items below and decide what you’d like to swap. More items will be added in the […]
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- SUB-TYPE OF MDS: Low risk MDS patients
- SEVERITY OF MDS: IPSS Low or Intermediate-1 risk MDS
- NAME OF DRUG: Imetelstat
Christmas is just around the corner and it will look drastically different for millions of people across the globe this year. Hope and encouragement will be needed to find safe ways of enjoying the season. Many of you will have seen Myelo’s Hope the animation we released on MDS World Awareness Day which explains MDS […]
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Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? The innovative drug Imetelstat has been trialed on patients with lower-risk MDS who are RBC (Red Blood Cells) transfusion dependent and have experienced relapse or not been helped by erythropoiesis-stimulating agent (ESA). This group of patients does not […]
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