MDS Latest News

A novel treatment for MDS patients in need of frequent blood transfusions

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? The innovative drug  Imetelstat has been trialed on patients with lower-risk MDS who are RBC (Red Blood Cells) transfusion dependent and have experienced relapse or not been helped by erythropoiesis-stimulating agent (ESA). This group of patients does not […]

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Trial to test existing drugs against rare blood cancer

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? A new clinical trial for MDS has just been launched. Designed by clinical experts, using existing (repurposed) drugs in a new way, with wide PPI (Patient and Public Involvement) input and feedback by MDS UK advocates and patients, […]

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25th of October: MDS World Awareness Day 2020 – Take Part!

It’s time to get your pens, brushes and camera out for MDS WAD on Sunday October 25th! This is a crucial day for the worldwide MDS community to make a stand against this rare blood cancer and raise much needed awareness! We would like to encourage as many people from MDS UK as possible to […]

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How have you coped over the past few months of COVID-19? Please let us know

MDS UK has teamed up with the NCRI MDS subgroup (National Cancer Research Institute), the UK MDS Forum (National MDS clinical experts group), and created a survey for MDS, CMML and AML patients and caregivers. This national survey is about your perspective and experience of the COVID-19 pandemic generally the clinical care and support you […]

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News for MDS patients from the European Registry

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? The best way to study a typical group of MDS patients is to set up a registry. A registry involves obtaining consent from patients and collect information about their MDS and the treatments they receive at their usual […]

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20for20 Gallery

Welcome to MDS UK’s #20for20 gallery! Here, you can have a look at what some of our wonderful participants have been up to in the campaign. Whether it be running, litter-picking, hula-hooping or poetry, our #20for20 fundraisers are doing amazingly well! We hope this page inspires more people to join MDS UK in the #20for20 campaign or […]

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Be our hero! Fundraise for MDS UK

MDS UK is the only charity solely dedicated to helping those affected by a rare blood cancer called Myelodysplastic Syndromes. MDS UK supports patients and their loved ones through pioneering research, a helpline, local patient meetings, and a website with up-to-date reliable information. We are a small charity that needs your support! MDS UK has […]

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World Leukemia Day on 4th September

MDS patients can be affected by leukaemia too: 10% of low-risk MDS cases do progress to Acute Myeloid Leukaemia 30% of high-risk MDS cases do progress to Acute Myeloid Leukaemia In those MDS cases, it is then called secondary AML, as opposed to de novo AML, when someone is suddenly diagnosed with acute myeloid leukaemia. […]

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Unique Stem Cell Transplants for Grandfather and Grandson

MDS UK Chairman, Ted Peel, and his grandson, Romain, are set to receive stem cell transplants within weeks of each other. Their generosity in sharing their moving story is doing wonders to raise awareness on MDS, encourage people to become stem cell donors and generate essential financial support for MDS UK and Teenage Cancer Trust. […]

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