MDS Latest News
It doesn’t seem likely that we shall be able to resume face-to-face meetings for a while yet. But we are keen to maintain our services to you, and provide you with all the regular news about MDS, as well as giving you an opportunity to connect to one another virtually. We know how important patient […]
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Our colleagues in the USA have produced an inspiring video as part of their international Patient & Family conference on this past weekend. In the video, American television broadcaster and MDS patient Robin Roberts talks to Gail J. Roboz, MD is professor of medicine and director of the Clinical and Translational Leukemia Program at the […]
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The coronavirus pandemic has affected everyone associated with our MDS UK charity. We have a committed team of staff and committee members, working tirelessly on a virtual basis to provide excellent care to those who need us most. Our office and headquarters are based at King’s College Hospital in South London, one of the largest […]
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As you may already know, The Great North Run – one of MDS UK’s biggest annual fundraisers was sadly postponed due to the Covid19 pandemic. Fortunately, the organisers have devised an excellent way to keep you running and raising essential funds for our life-changing work: The Great Run Solo, a virtual running challenge to keep […]
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The service is not open for new registrations at the moment, because people aren’t being advised to shield in most of England from 1 August 2020. The last boxes of food and basic supplies will be sent out by 31 July. If you’ve already registered and got priority access to supermarket deliveries, you’ll keep it. Contact […]
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Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? A recent article in the American Society of Hematology (ASH) Clinical News has identified how, for too many years and despite its unique clinical and biological characteristics, CMML (Chronic Myelomonocytic Leukaemia) has been treated as a form of […]
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Do you have a few minutes to help the Blood Cancer Alliance (BCA) with this patient survey about access to medicines and treatment in the UK? The Blood Cancer Alliance would love to hear from patients, families and carers about their experiences. The survey will close on 1st of July! Please take part in this […]
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Issue date – 5 June 2020 Writing group: UK MDS Forum and NCRI MDS subgroup Consultants – please contact any member of the subgroup members for further advice if required, or: Prof David Bowen, Lead for Writing Group, Leeds. Dr Sally Killick, NCRI MDS chair, Bournemouth Dr. Dominic Culligan, UK MDS Forum Chair, Aberdeen This […]
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However it won’t be quite the same as pre-covid times. We asked the MDS experts to explain what patients may expect in the weeks and months to come. And – to remind all patients that despite covid, isolation, shielding and perhaps not seeing your usual clinical teams, it is still VERY important to communicate any […]
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Our colleagues in the USA offered a free webinar on Friday, May 22nd, 2020 on the impact of COVID-19 on the lessons learned for bone marrow failure patients and what patients should do to protect themselves from the virus. If you haven’t been able to attend the webinar, or would like to watch the presentation […]
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