Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? Report from the MDS Education Forum that took place in November 2018. Interviews by Sophie Wintrich Chief Executive of MDS UK Patient Support Group. What are Myeloid Gene Panels and how are they used in MDS? One of […]
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Professor David Bowen and Leeds Teaching Hospitals are pleased to announce a new service for patients who would like a specialist MDS consultation but who are unable to, or prefer not to travel to Leeds for a conventional clinic appointment. This is a brand new type of NHS service opening for MDS patients, for online […]
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Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? If you are an MDS patient, it is important to find out about scientific research, and to know about ways you can contribute, as new treatments or improvements may come out of research. Clinical trials are one way […]
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We wanted to you be the first to hear that registration is now open on our iconic London to ParisTour de France Challenge for 2020! Taking place on 15 – 19 July 2020, this incredible adventure is our most popular cycling challenge and it’s easy to see why – with the the finale of the world’s greatest cycle race awaiting […]
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Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? By Bettina Ryll My husband’s diagnosis with melanoma and our struggle to access effective therapy challenged what I had learnt about medical research. I have since founded a patient network, becoming a vocal advocate for patient- centric drug […]
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MDS UK does not receive any other types of grants or assistance from Government or Trusts. We need funds to offer patients these services free of charge:
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The latest MDS UK Patient and Family Forum took place in Harrogate on Friday 22nd March. It was an invaluable opportunity for those affected by MDS to hear about the latest developments in MDS research and treatment. The meeting was open to MDS patients and their guests, as well as clinical staff. Patients and their families […]
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Currently, several new drugs are being tested in clinical trials, aiming at improving the treatment of haematologic malignancies (HM). These trials, however, measure different results – also called treatment response, or outcomes – which makes it difficult to compare and combine all this information. Lars Bullinger (Charité Hospital in Berlin) makes the following observations: “For […]
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Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? The Institute of Cancer Research, London, one of the world’s most influential cancer research organisations, has published an in-depth analysis about the discovery and access of innovative cancer drugs. Read the full report Haematological cancers have seen dramatic […]
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Being diagnosed with myelodysplastic syndrome (MDS) can be a shock, particularly when you may never have heard of it. MDS UK has now produced a new edition of the MDS patient booklet, created in cooperation with our colleagues from Leukaemia Care and Bloodwise. At MDS UK, we felt there was an urgent need to revise the […]
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