About Us
MDS UK Patient Support Group is a charity started in 2008 to raise awareness and offer support and information to patients and families affected by Myelodysplastic Syndromes & CMML . We also campaign to make treatments available and to increase Quality of Life (Q0L) for MDS & CMML patients. If you have MDS or CMML, or someone in your family has, you're in the right place.
MDS UK review of 2024 by Debbie Hickman, CEO
Read a round-up of MDS UK's achievements in 2024 and a look ahead to what's coming up in 2025, by our CEO Debbie Hickman.
Trustee Reports for MDS UK - 2024
To read our latest reports by the Trustees on the Charities Commission website follow the link below:
Our contact details
Telephone: 020 7733 7558
Email: info@mdspatientsupport.org.uk
Address:
Unit B12
The Fuel Tank
8-12 Creekside,
London
SE8 3DX
Charity Commission details: Registered Charity no. 1145214
For more contacts see Contact Us.
How we support patients with MDS & CMML
We offer free membership to our charity MDS UK Patient Support Group which gives patients, families and carers access to:
- Our Helpline
You can Contact Us for help and advice by telephone 9-5, Monday to Friday 020 7733 7558 - Consultant Lists
We can provide a list of UK consultants specialising in MDS at specialist centres. - Meetings
You can join our online Patient Support meetings with specialist speakers, (e.g.haematology consultants or Clinical Nurse specialists), or attend national patient-to-patient support group meetings online for informal support, led by our Local Patient Support Ambassadors from around the UK. - Information
Request our Booklets & Factsheets and access our website, which provides the most updated information on MDS, Patient Stories and current research. - Chat Forum
Take part in our Chat Forum and share your experiences as an MDS patient, write or respond to other people's messages. - Test
