MDS UK Patient Support Group is a charity started in 2008 to raise awareness and offer support and information to patients and families affected by Myelodysplastic Syndromes & CMML . We also campaign to make treatments available and to increase Quality of Life (Q0L) for MDS & CMML patients. If you have MDS or CMML, or someone in your family has, you're in the right place.
How we support patients with MDS & CMML
We offer free membership to our charity MDS UK Patient Support Group which gives patients, families and carers access to:
- Our Helpline
You can Contact Us for help and advice by telephone 9-5, Monday to Friday 020 7733 7558
- Consultant Lists
We can provide a list of UK consultants specialising in MDS at specialist centres.
You can join our online Patient Support meetings with specialist speakers, (e.g.haematology consultants or Clinical Nurse specialists), or attend national patient-to-patient support group meetings online for informal support, led by our Local Patient Support Ambassadors from around the UK.
Request our Booklets & Factsheets and access our website, which provides the most updated information on MDS, Patient Stories and current research.
- Chat Forum
Take part in our Chat Forum and share your experiences as an MDS patient, write or respond to other people's messages.