About Us
MDS UK Patient Support Group is a charity started in 2008 to raise awareness and offer support and information to patients and families affected by Myelodysplastic Syndromes & CMML . We also campaign to make treatments available and to increase Quality of Life (Q0L) for MDS & CMML patients. If you have MDS or CMML, or someone in your family has, you're in the right place.
Our contact details
Telephone: 020 7733 7558
Email: info@mdspatientsupport.org.uk
Address:
Unit B12
The Fuel Tank
8-12 Creekside,
London
SE8 3DX
Charity Commission details: Registered Charity no. 1145214
For more contacts see Contact Us.
How we support patients with MDS & CMML
We offer free membership to our charity MDS UK Patient Support Group which gives patients, families and carers access to:
- Our Helpline
You can Contact Us for help and advice by telephone 9-5, Monday to Friday 020 7733 7558 - Consultant Lists
We can provide a list of UK consultants specialising in MDS at specialist centres. - Meetings
You can join our online Patient Support meetings with specialist speakers, (e.g.haematology consultants or Clinical Nurse specialists), or attend national patient-to-patient support group meetings online for informal support, led by our Local Patient Support Ambassadors from around the UK. - Information
Request our Booklets & Factsheets and access our website, which provides the most updated information on MDS, Patient Stories and current research. - Chat Forum
Take part in our Chat Forum and share your experiences as an MDS patient, write or respond to other people's messages.
It's quick, free and easy to join. Click here to Become a Member
Our Strategic Objectives 2023
We exist to improve the lives of everybody affected by MDS and CMML. Download our Strategic Objectives 2023 to find out more.
Our Statutory Accounts
Our statutory accounts are published every year on the Charity Commission Website
