MDS Latest News
Getting your fourth vaccine Some patients categorised as CEV (clinically extremely vulnerable) were sent appointment letters for a fourth vaccine in December, but when our patient representative for Scotland (Maureen) reached twelve weeks post third primary vaccination (confusingly sometimes wrongly referred to as booster), she heard nothing. It was easy to book a next day […]
Read full storyToday – 4th February 2022 is World Cancer Day Browse the interesting programme: https://www.worldcancerday.org/live#programme This year the MDS community is marking the day in an effort to ensure Myelodysplastic Syndromes are consistently referred to as a form of blood cancer. Too often, some patients are still not told MDS falls under the general umbrella of […]
Read full storyCovid-19 treatments for some severely immune-compromised patients are now available. The Department of Health and Social Care (DHSC) has issued a ‘Rapid Policy Statement’ regarding ‘Neutralising monoclonal antibodies or antivirals for patients with COVID-19’, for both hospitalised and non-hospitalised settings. The eligibility criteria for these drugs was revised on the 24th December. The most important change […]
Read full storyDate: 21 December 2021 Overview On 12 December the Prime Minister announced a rapid expansion of the booster programme to seek to mitigate the swiftly-growing wave of Omicron-variant Covid-19 cases. The following day, the NHS confirmed in a letter from Amanda Pritchard (chief executive, NHS England) and Stephen Powis (chief executive, NHS Improvement) to the […]
Read full storyThe first 2 patients with MDS have been recruited in this exciting new trial for lower-risk MDS. If you don’t yet know about this trial, please check the articles we have produced, as part of our role as PPI group in this research. https://mdspatientsupport.org.uk/repair-mds-trial-a-new-clinical-approach-for-lower-risk-mds-patients/ If you are interested in taking part, and think you could […]
Read full storyResearch FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? This report is written by Chris Dugmore and Claudia Richards who attended the UK MDS Forum event virtually. Having attended in person in previous years, and the event being cancelled last year, the offer of a Covid-secure attendance […]
Read full storyThe MHRA is the organisation that regulates licensing of new drugs in the UK. They took over from the EMA (European Medicines Agency) since Brexit. They are now proposing to change a few aspects with regards to clinical trials. If you have ever taken part in a clinical trial, or considered doing so – please […]
Read full storyThe office and the helpline will be closed from Saturday 24th December 2022 to Monday 2nd January 2023 inclusive. We will be re-opening on Tuesday 3rd January 2023. Our Facebook page and Chat Forum will remain open for any member to member communication. For any clinical queries, as ever, please contact your clinical team. Wishing you all a restful, safe, healthy festive break. We will be here to answer calls or emails until 5.30pm on 23rd December 2022.
Read full storyPlease note we will be closed during the festive season from Monday 27th December to Tuesday 4th January 2022. Have a look at our Top Tips: Having MDS has impact on your life. Each person copes in their own unique way. Not everything in the list will apply to you, but there might be feelings […]
Read full storyJust a little reminder for you to let your hair down and come along to the Christmas Zoom café social tomorrow!
When: Tuesday 13th December
Time: 1.30pm-3pm
Where: Online via Zoom
Please register as soon as you can so we can plan the activities but, in advance, here are some handy hints for attending…