If you are listed as a vulnerable or disabled person, due to MDS or any other condition, and your local water authority has imposed a hosepipe ban, please contact […]

  The drug Evusheld has been approved by the MHRA (Medicines and Healthcare products Regulatory Agency), but the government has not yet made a decision whether to make it available […]

Help us to improve the lives of everyone affected by MDS by volunteering your time and experience. Volunteers play a vital role in MDS UK; the expertise and time given […]

Try our newly upgraded Chat Forum,  it’s the perfect answer! Whether you are a lapsed user, or new member – do give it a try! Leave a new message in one of the folders, ask a question, respond to a message that’s already there or just say hi!

  The Birmingham Football Association has just announced their collaboration with our amazing ambassador Simon Wilkes and charity partner Anthony Nolan. Simon will be working with the FA to increase […]

Technically speaking, no MDS or CMML patients should have issues accessing vaccines or anti-COVID19 medication.

If however, you encounter problems, do point any GPs to the document below, which is a new list identifying exactly and precisely who the highest at risk patients are, in terms of COVID-19 infection. MDS, CMML and transplant patients are all listed.

  COVID-19 is not yet over for blood cancer, as you all know. Access to medication and services has been difficult, in the UK, and other countries. The International COVID-19 […]

The sun was shining for our trio riding for MDS on Sunday 29 May – Tim Woolley, Adrian Skardhamer and Alexander Myers – all cycled 100 miles in the RideLondon-Essex […]

After a busy period recruiting, we have now filled all our advertised positions and are delighted to say we have 3 new people joining our team!