Support for MDS / CMML

If you or a loved one have been diagnosed with MDS or CMML, we’re here to support you. You may have questions, feel overwhelmed, or need help. From here, you can contact us, join online support meetings, read personal stories, and browse useful resources.
Support for MDS / CMML

Contact us for Support

If you need information about a particular issue you can contact us in several ways.

 

Come to online Support Meetings

Join regular virtual meetings where you can ask questions and connect with others.

 

Newly diagnosed with MDS/CMML?

Quickly access our most relevant resources for those newly diagnosed.

 

Real stories

Uplifting stories from others living with MDS/CMML offering hope, practical tips, and emotional support.

 

Find an MDS Specialist

You can ask your clinical team to be referred to an MDS specialist centre for an additional opinion.

 

Questions for appointments

Use these pre-prepared questions to help you get the most out of your appointments.

 

Become a member of MDS UK, it's free and easy to join

Watch : 'Knowing your rights & accessing help'

This video from The Patients Association, 'Knowing your rights, accessing help, and making the most of your healthcare appointment,' provides practical advice on how to better manage your experience in the healthcare system.

Connect with 1,000+ members affected by MDS & CMML for peer support, shared experiences, and a safe space to ask questions.

"MDS UK is a lifeline, that we joined for a sense of normality. To have world-renowned MDS experts in our own kitchen, with the chance to ask questions, is incredible!"

Debbie

"Getting in touch with the MDS Patient Support Group is proving to be one of the most reassuring (and helpful) things we have done so far since my Dad was diagnosed."

Sue