Support for MDS / CMML
If you or a loved one have been diagnosed with MDS or CMML, we’re here to support you. You may have questions, feel overwhelmed, or need help. From here, you can contact us, join online support meetings, read personal stories, and browse useful resources.
Contact us for Support
If you need information about a particular issue you can contact us in several ways.
Come to online Support Meetings
Join regular virtual meetings where you can ask questions and connect with others.
Newly diagnosed with MDS/CMML?
Quickly access our most relevant resources for those newly diagnosed.
Real stories
Uplifting stories from others living with MDS/CMML offering hope, practical tips, and emotional support.
Find an MDS Specialist
You can ask your clinical team to be referred to an MDS specialist centre for an additional opinion.
Questions for appointments
Use these pre-prepared questions to help you get the most out of your appointments.
Become a member of MDS UK, it's free and easy to join
This video from The Patients Association, 'Knowing your rights, accessing help, and making the most of your healthcare appointment,' provides practical advice on how to better manage your experience in the healthcare system.