MDS Booklets & Factsheets

New Edition! Learn more about MDS with Our MDS Patient Handbook

What are Myelodysplastic Syndromes and what are their current treatment options by Prof. D. Bowen

  • What is MDS? An updated view
  • What are the goals for treatment?
  • How do we treat MDS in the UK in 2019?

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Stem Cell Transplant: Information Booklets

7 Steps handbook about Bone Marrow Transplant

This book was written to provide information about the typical experience of a patient receiving a stem cell transplant.

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The Seven Steps - The Next Steps

For a small group of patients, the long-term and late effects of the transplant can have a very serious impact on their general health and wellbeing. As a result good quality of life can be difficult to achieve. This book, The Next Steps hopes to address some of these in more detail to help you understand more about the transplant journey.

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Information about MDS UK Patient Support Group

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MDS UK Patient leaflet

Hospital staff can order stocks via our main office on 0207 733 7558
Or online on our Contact us page

MDS UK Patient Poster

A4 Poster for display in hospital waiting rooms

Feel free to print and use – or request a laminated copy via our office

MDS Factsheets

Printable material to help you understand specific aspects on Myelodysplastic Syndromes and manage the disease

Clinical Trials in MDS

Printable Information for patients and family members

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What are ESAs? Information and advice on EPO and GCSF

Fact sheet for Myelodysplastic Syndrome (MDS) Patients

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Nutrition Information and advice & neutropenic diets

Factsheet for Myelodysplastic Syndrome (MDS) Patients


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Fatigue Factsheet: Effects &self-management tips

Fatigue factsheet for Myelodysplastic Syndrome (MDS) Patients

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Myelodysplastic Syndromes: Presentations

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MDS - Diagnosis, Treatment and Research, Dr Austin Kulasekararaj
General MDS, Dr Chris Dalley
High Risk MDS and hypomethylating agents, Dr Kavita Raj
Genes and Genomes and MDS, part 1 - Nicholas Lea
Genes and Genomes and MDS, part 2 - Nicholas Lea
Understanding MDS and Introduction to Blood Transfusion, by Dr Dora Foukaneli
SLIDES - Coping with Anxiety, Anne Crook
HANDOUT - Coping with Anxiety, Anne Crook
Myelodysplastic Syndromes, Part 1, Dr Austin Kulasekararaj
Myelodysplastic Syndromes, Part 2, Dr Austin Kulasekararaj
MDS Patient Forum, Sophie Wintrich
MDS National Survey, Monika Janosik

Clinical Trials: A 2019 Update on Current Trials and the European Registry Trial

Clinical Trials in MDS by Dr Simone Green

Which clinical trials are open to recruitment in the UK? What are they aims?

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The European MDS Registry - by Dr Catherine Langton

What is a Registry Trial? How can it improve the lives of patients?

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