MDS Booklets & Factsheets
New MDS Guide (2024)
A downloadable comprehensive MDS Guide for patients, families and care-givers which describes the various types of MDS, diagnosis, treatment and more. Co-written by the MDS UK Patient Support Group and Leukaemia Care, this guide is a brand new edition (April 2024).
If you'd prefer a hard copy, email us at admin1@mdspatientsupport.org.uk and we'll be happy to post one out to you.
Patient Information booklet - A5
An A5 booklet (8pgs) that provides an overview of the information and support we offer at MDS UK.
What are Myelodysplastic Syndromes and what are their current treatment options by Prof. D. Bowen
- What is MDS? An updated view
- What are the goals for treatment?
- How do we treat MDS in the UK in 2019?
Stem Cell Transplant: Information Booklets
7 Steps handbook about Bone Marrow Transplant
This book was written to provide information about the typical experience of a patient receiving a stem cell transplant.
The Seven Steps - The Next Steps
For a small group of patients, the long-term and late effects of the transplant can have a very serious impact on their general health and wellbeing. As a result good quality of life can be difficult to achieve. This book, The Next Steps hopes to address some of these in more detail to help you understand more about the transplant journey.
Information about MDS UK Patient Support Group
Click on the icon to download the documents
MDS UK Patient leaflet
Hospital staff can order stocks via our main office on 0207 733 7558
Or online on our Contact us page
MDS UK Patient Poster
A4 Poster for display in hospital waiting rooms
Feel free to print and use – or request a laminated copy via our office
MDS Factsheets
Printable material to help you understand specific aspects on Myelodysplastic Syndromes and manage the disease
What are ESAs? Information and advice on EPO and GCSF
Fact sheet for Myelodysplastic Syndrome (MDS) Patients
Nutrition Information and advice & neutropenic diets
Factsheet for Myelodysplastic Syndrome (MDS) Patients
Fatigue Factsheet: Effects &self-management tips
Fatigue factsheet for Myelodysplastic Syndrome (MDS) Patients
Myelodysplastic Syndromes: Presentations
Click on the icon to download the presentations and handouts
Clinical Trials: A 2019 Update on Current Trials and the European Registry Trial
Clinical Trials in MDS by Dr Simone Green
Which clinical trials are open to recruitment in the UK? What are they aims?
The European MDS Registry - by Dr Catherine Langton
What is a Registry Trial? How can it improve the lives of patients?
