Online Support Meetings
Online support meetings provide valuable opportunities to connect with others affected by MDS or CMML. They offer a supportive space to share experiences, receive mutual support, and learn about the latest advancements in research and medicine. Some sessions feature presentations by leading haematology consultants and MDS/CMML specialists, with time for your questions at the end. Caregivers and family members are also very welcome to attend. Members say they find these meetings invaluable.
Meetings typically last between 1.5 - 2 hours, are held via Zoom, and are hosted by MDS UK staff or volunteer ambassadors.
Upcoming Meetings
Membership is required to come to Support Meetings, so if you're not a member yet, click the red button to sign up (it's free). For any questions, call 020 7733 7558.
March 2025
Wed 5
March 5th: Support Meeting (with speaker, consultant haematologist, Dr Beth Payne)
This meeting has passed. Click the green button below to watch a recording of the presentation.
A huge thank you to consultant haematologist, Dr. Beth Payne for her presentation—nearly 70 MDS UK members came to the meeting and found it incredibly helpful. You can watch a recording of Dr Payne’s presentation by clicking the button below.
We look forward to seeing you at our upcoming support meetings!
Tues 18
March 18th @ 10.30am -
Online Meeting about new Vitamin B5 study : research, eligibility, trial sites & more
Join us to learn about this exciting MDS UK-funded study on how Vitamin B5 (pantothenic acid) may help alleviate anaemia in MDS patients.
April 2025
Thur 10
April 10th @ 10.30am-12.30pm
Support Meeting (general)
If you or a loved one have MDS or CMML, join our online Support Meeting with MDS UK Patient Support Nurse Linda Hunter and Blossom Bell. Ask questions, join regional breakout rooms, and connect with others to share experiences.
May 2025
Tues 6
May 6th @ 6.00-8.00pm
Support Meeting (for Watch & Wait)
If you or a loved one have MDS or CMML, join our online Support Meeting with MDS UK Patient Support Nurse Linda Hunter and Blossom Bell. Ask questions, connect with others to share experiences and get support.
Thurs 22
May 22nd @ 2.00pm
CMML Support Meetings (hosted by Leukaemia Care)
Leukaemia Care are hosting CMML support meetings in 2025 with Dr. Dan Wiseman's team. The three dates are; May 22nd @2.00pm, July 31st @2.00pm and November 13th @2.00pm. Register once and you'll receive links for all dates.
