Neutropenic sepsis is a life-threatening condition that needs urgent treatment. If you or your caregiver suspect Neutropenic Sepsis, contact your medical team for advice. If it is out-of-hours, treat it as an medical emergency and call 999 immediately. Read the signs and symptoms here. Even very slight symptoms may require urgent treatment and must not be ignored as infections can develop rapidly.

Dr Beth Payne is a consultant haematologist at UCLH who specialises in the treatment of MDS and bone marrow failure. This is a recording of a Zoom presentation she gave to the MDS UK Patient Support Group called ‘Latest developments in MDS diagnostics & treatments’ in July 2023.

The Joint Committee on Vaccination and Immunisation (JCVI) has announced the eligibility criteria for who can receive a COVID-19 booster vaccine in Autumn 2023. Find out which groups are eligible.

On the 5th August 2023 Joe will be attempting an utterly awesome challenge, the North Downs Way 100, a 103 mile (yes 103 mile, 167km!) ultramarathon to raise awareness of and money for MDS UK. Please Donate to support Joe Thomas in his incredible ultramarathon.

Those of you who have been told you are eligible for Covid treatments, should you test positive for Covid, should have received a recent NHS notification from Sir Stephen Powis […]

Dr Daniel Wiseman is an Honorary Consultant Haematologist at The Christie, NHS Foundation Trust, Manchester, and has great expertise in treating patients with CMML (Chronic Myelomonocytic Leukemia). This is a recording of a Zoom presentation he gave to the MDS UK Patient Support Group called  ‘Perspectives on CMML: Diagnosis & Treatment.’  Following the presentation, there are Q&As between Dr. Wiseman and a group of patients. 

We host online Patient Support Meetings and Specialist Speaker Meetings with leading experts in MDS and CMML. With the transition to Zoom, we know that some people may need help adapting to this technology. That’s why we’ve linked up with AbilityNet, a charity that provides IT support and guidance, including support with Zoom. Find out more.

On May 5th 2023, the National Institute for Health and Care Excellence (NICE) confirmed their decision not to approve Evusheld for use on the NHS in the UK. This means that, currently, Evusheld will not become available on the NHS in the UK.

We want to thank Kulwinder Aujla, Claire Philpott, Andrew Humphries, and Ashleigh Venables for their wonderful fundraising efforts for MDS UK last month. Completing the 2023 London Marathon and Glasgow Kiltwalk (despite the rain!) is truly amazing. Find out more and follow their links to Donate.

The NHS website has updated information from March 2023 on Covid-19 treatments for those at highest risk. Find out what the key changes are for patients with MDS, CMML, or people who have undergone a stem cell transplant.