Suzie, diagnosed with MDS when she was 6 years old

We thought it was just a normal childhood virus Suzie was 5 years old when she became unwell. She developed a really high temperature...

Adrian, husband of Emma, who was diagnosed with MDS in August 2018

Emma's diagnosis came as a shock Emma was diagnosed with MDS in August this year, which came as a bit of shock. She has...

Russell Cook: “The diagnosis has given me an enormous focus, it’s made my family much closer”

In 2010 I had the last of three bone marrow transplants to treat my MDS. Quite a few things have happened since then! From...

Ally Boyle: a retired fire officer tells us his experience with MDS

In mid 2007 I began to feel really exhausted and unwell, I had been working long hours in a stressful job as a senior...

Ghani needed Azacitidine, but in Kosovo there was no easy way to get it

What national and international patient advocacy can achieve when working in cooperation By Blerina Ahmetaj-Shala. Imagine hearing the news – you father in law,...

Bergit Kulhe, MDS patient and advocate, tells us about her experience with iron chelation

Following is an article by our friend and long-term MDS patient advocate from Germany, Bergit Kuhle. Bergit, together with Anita Waldmann, runs an MDS...