Giving Support and Information to MDS Patients and their Families

MDS UK Patient Support Group is a Registered Charity No 1145214 - Contact Us!

Fiona Cherry MDS story: My journey to a diagnosis

In 2017 at the age of 38, I was diagnosed with Familial MDS. It came as a bit of shock and took me a...
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Fiona Cherry MDS story: My journey to a diagnosis

Rebecca’s Story: Three Years after her Bone Marrow Transplant

In 2015 I walked into a consultants room expecting some new prescription or the ‘we don't know’ I had been hearing for past seven...
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Rebecca’s Story: Three Years after her Bone Marrow Transplant

Adrian, husband of Emma, who was diagnosed with MDS in August 2018

Emma's diagnosis came as a shock Emma was diagnosed with MDS in August this year, which came as a bit of shock. She has...
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Adrian, husband of Emma, who was diagnosed with MDS in August 2018

Russell Cook: “The diagnosis has given me an enormous focus, it’s made my family much closer”

In 2010 I had the last of three bone marrow transplants to treat my MDS. Quite a few things have happened since then! From...
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Russell Cook: “The diagnosis has given me an enormous focus, it’s made my family much closer”
DONATE BONE MARROW

All it takes to join the register is a bit of spit or a swab
MDS GLOSSARY

A handy A-Z list of words
MDS MATERIALS AT CLINIC

Would you like to order information materials for MDS patients at your hospital?

Learn more about MDS with Our MDS Patient Handbook: New edition!

Our Patient Handbook, has been written to help you understand more about MDS
Download and Print

Donate Today

Although we are a voluntary charity, we do need funds to be able to support more patients. Can you help?
How to Give

Our Committee Members

Medical Support for the MDS UK Patient Support Group

The MDS UK Patient Support Group is affiliated with the UK MDS Forum, the foremost UK specialists organisation focused upon MDS, providing information and advice on the status and progress with MDS research and treatment in the UK, as well as the MDS Foundation, Inc, based in the USA. The MDS UK Patient Support Group is also supported by major pharmaceutical companies.

The MDS UK Patient Support Group is a founding member of the MDS Alliance, the international umbrella group for all national MDS support groups. The MDS Alliance is dedicated to sharing and improving MDS information and awareness between patients, globally.

Prefer to speak on the phone? Call our helpline for an initial chat 02077337558

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