MDS UK Patient Support Group

Support and Information for MDS Patients and their Families

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Patient Stories

Christine Cain: “My inquisitive mind led to my recent MDS diagnosis!”

Christine: I have been most fortunate with my health and never had any serious health issues before My name is Christine Cain, aged 69...
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Christine Cain: “My inquisitive mind led to my recent MDS diagnosis!”

Michael Bower: “I call it ‘the condition’ as I hate using the ‘C’ word”

My name is Michael Bower, I am a 63 yr old male. I was diagnosed with MDS in September 2016. Having had trouble with...
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Michael Bower: “I call it ‘the condition’ as I hate using the ‘C’ word”

Will McGookin: MDS diagnosis and his interview with Sky News

MDS patient Will McGookin was delighted when a twitter post about the postponement for his chemotherapy due to Covid19 led to an exclusive interview...
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Will McGookin: MDS diagnosis and his interview with Sky News

Graham Cheyne: “My CMML may give insight into a way forward in treatment”

I sat with a diagnosis of CMML, feeling perfectly well and not knowing what to ask... On the 27th of August 2019 I attended...
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Graham Cheyne: “My CMML may give insight into a way forward in treatment”

Medical Support for Our Charity

MDS UK Patient Support Group is affiliated with the UK MDS Forum, the foremost UK medical organisation focused upon Myelodysplastic Syndromes, providing information and advice on the status and progress of the disease research and treatment in the UK, as well as the MDS Foundation, Inc, based in the USA.

MDS UK Patient Support Group is also supported by major pharmaceutical companies and other organisations.

MDS UK Patient Support Group is a founding member of the MDS Alliance, the international umbrella group for all national support groups. The MDS Alliance is dedicated to sharing and improving information and awareness between patients, globally.

MDS UK Patient Support Group is a registered charity. Reg Charity No: 1145214

Prefer to speak on the phone? Call our helpline for an initial chat 02077337558

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