Patient Stories

Graham Cheyne: “My CMML may give insight into a way forward in treatment”

I sat with a diagnosis of CMML, feeling perfectly well and not knowing what to ask... On the 27th of August 2019 I attended...
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Graham Cheyne: “My CMML may give insight into a way forward in treatment”

Rebecca’s Story: Three Years after her Bone Marrow Transplant

In 2015 I walked into a consultants room expecting some new prescription or the ‘we don't know’ I had been hearing for past seven...
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Rebecca’s Story: Three Years after her Bone Marrow Transplant

Kevin’s Story: at 70, with MDS, and an avid adventure cyclist

I was diagnosed with MDS in 2013 at the age of 64, after 18 months of various tests and investigations. I remember feeling relief...
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Kevin’s Story: at 70, with MDS, and an avid adventure cyclist

Kes Grant tells us how it feels to live with MDS

"I have lived with blood cancer (MDS) for 19 years, officially, being diagnosed in 2000, but I had test to query it a couple...
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Kes Grant tells us how it feels to live with MDS

Upcoming Events

  1. Rebecca Bennet Art Exhibition and Card Sale in aid of MDS UK
    November 5 @ 8:00 am - December 31 @ 5:00 pm
  2. Anglia MDS UK Local Patient Meeting – 06/01/2020
    06/01/2020 @ 10:30 am - 12:00 pm
  3. Yorkshire MDS UK Local Patient Meeting – 26/02/20
    26/02/2020 @ 2:00 pm - 5:00 pm
  4. Anglia MDS UK Local Patient Meeting – 09/03/2020
    09/03/2020 @ 10:30 am - 12:00 pm
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MATERIALS AT YOUR CLINIC

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Giving Support and Information to MDS Patients and their Families

MDS UK Patient Support Group is a Registered Charity No 1145214 - Contact Us!

Learn more about MDS with Our Patient Handbook: New edition

Our Patient Handbook, has been written to help you understand more about MDS

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Research For Patients

Medical Support for Our Charity

MDS UK Patient Support Group is affiliated with the UK MDS Forum, the foremost UK medical organisation focused upon Myelodysplastic Syndromes, providing information and advice on the status and progress of the disease research and treatment in the UK, as well as the MDS Foundation, Inc, based in the USA.

MDS UK Patient Support Group is also supported by major pharmaceutical companies and other organisations.

MDS UK Patient Support Group is a founding member of the MDS Alliance, the international umbrella group for all national support groups. The MDS Alliance is dedicated to sharing and improving information and awareness between patients, globally.

MDS UK Patient Support Group is a registered charity. Reg Charity No: 1145214

Prefer to speak on the phone? Call our helpline for an initial chat 02077337558

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