MDS UK Support Group helps anyone affected by MDS or CMML

Providing reliable information, support and a chance to connect with leading UK specialists in MDS & CMML at online Support meetings 

MDS Patient Support

  • Plant a sunflower in the MDS UK virtual garden!

    Plant a sunflower in our virtual garden to show appreciation for someone special—whether to thank a friend for their kindness or to honour the memory of a loved one. Each sunflower planted brings hope to those living with MDS & CMML. Your donations help fund our helpline, support groups, and life-changing research. We’re so grateful for your continued support.

  • Coping with a diagnosis of MDS or CMML 

    A video presentation by senior psychotherapist, Surabhi Chaturvedi, on 'The emotional impact of a diagnosis of MDS or CMML.' Surabhi explores topics like: adjusting to the diagnosis, myths and false expectations, coping with uncertainty, the importance of peer support and offers many strategies for coping and for living well with MDS or CMML.

Become a member of MDS UK, it's free and easy to join

Membership is required to come to Support Meetings, so if you're not a member yet, click the red button to sign up (it's free). For any questions, call 020 7733 7558.

Watch : 'Knowing your rights & accessing help'

This video from The Patients Association, 'Knowing your rights, accessing help, and making the most of your healthcare appointment,' provides practical advice on how to better manage your experience in the healthcare system.

Are you newly-diagnosed with MDS or CMML?

Try our 'Quick Links Guide' to go straight to the pages, articles and videos on our website that we believe are the most useful in those early days following diagnosis.

Questions to ask your healthcare team 

It's easy to get overwhelmed by some of the complex information given at your appointments. Use this pre-prepared list of questions to help you get the answers you need.

New MDS Guide (2024)

A downloadable comprehensive MDS Guide for patients, families and care-givers which describes the various types of MDS, diagnosis, treatment and more. Co-written by the MDS UK Patient Support Group and Leukaemia Care, this guide is a brand new edition (April 2024).

If you'd prefer a hard copy, email us at admin1@mdspatientsupport.org.uk and we'll be happy to post one out to you.

Connect with 1,000+ members affected by MDS & CMML for peer support, shared experiences, and a safe space to ask questions.

Focus on Blood Transfusions

As anaemia is the most common symptom of MDS and many will need transfusions at some stage, we're highlighting the importance of blood donation for MDS patients. This article also features a video presentation by Dr Matt Poynton of Oxford University Hospitals NHS Foundation Trust about blood transfusions and MDS patients. Find out more.

Professionals - join our network

Help us improve patient care and support for those affected by MDS & CMML by joining our professional network. Receive updates on patient experiences, access to treatments, quality of life, research funds, and our collaborations with MDS organizations worldwide. Membership is free. Find out more

MDS Patient Support
MDS Patient Support
MDS UK Patient Support Group logo
MDS Patient Support

MDS UK Patient Support Group is a registered member of the ICO  (Registration no: ZB332063)

MDS UK Patient Support Group is a founding member of the MDS Alliance, the international umbrella group for all national support groups. The MDS Alliance is dedicated to sharing and improving information and awareness between patients, globally.

MDS UK Patient Support Group is a registered charity (Registered charity No: 1145214)

MDS UK Patient Support Group is a registered charity (Registered charity No: 1145214)