MDS UK Support Group helps anyone affected by MDS or CMML

Providing reliable information, support and a chance to connect with leading UK specialists in MDS & CMML at online Support meetings 

We want to hear from you!

How can we better support you? Is there anything we don’t currently offer that you’d like to see? Help us improve by giving us your feedback in our MDS UK Survey 2024.

Are you newly-diagnosed with MDS or CMML?

Try our 'Quick Links Guide' to go straight to the pages, articles and videos on our website that we believe are the most useful in those early days following diagnosis.

Questions to ask your healthcare team 

It's easy to get overwhelmed by some of the complex information given at your appointments. Use this pre-prepared list of questions to help you get the answers you need.

New MDS Guide (2024)

downloadable comprehensive MDS Guide for patients, families and care-givers which describes the various types of MDS, diagnosis, treatment and more. Co-written by the MDS UK Patient Support Group and Leukaemia Care, this guide is a brand new edition (April 2024).

If you'd prefer a hard copy, email us at admin1@mdspatientsupport.org.uk and we'll be happy to post one out to you.

Focus on Blood Transfusions

As anaemia is the most common symptom of MDS and many will need transfusions at some stage, we're highlighting the importance of blood donation for MDS patients. This article also features a video presentation by Dr Matt Poynton of Oxford University Hospitals NHS Foundation Trust about blood transfusions and MDS patients. Find out more.

Patient Stories

Athar Jamil

A journey of hope - my unfinished story! Nelson Mandela once said “The greatest glory in living lies not in never falling, but in...
Read More
Athar Jamil

Professionals - join our network

Help us improve patient care and support for those affected by MDS & CMML by joining our professional network. Receive updates on patient experiences, access to treatments, quality of life, research funds, and our collaborations with MDS organizations worldwide. Membership is free. Find out more

MDS UK Patient Support Group logo

MDS UK Patient Support Group is a registered member of the ICO  (Registration no: ZB332063)

MDS UK Patient Support Group is a founding member of the MDS Alliance, the international umbrella group for all national support groups. The MDS Alliance is dedicated to sharing and improving information and awareness between patients, globally.

MDS UK Patient Support Group is a registered charity (Registered charity No: 1145214)

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