Patient Stories
Will McGookin: MDS diagnosis and his interview with Sky News
MDS patient Will McGookin was delighted when a twitter post about the postponement for his chemotherapy due to Covid19 led to an exclusive interview...
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Graham Cheyne: “My CMML may give insight into a way forward in treatment”
I sat with a diagnosis of CMML, feeling perfectly well and not knowing what to ask... On the 27th of August 2019 I attended...
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Rebecca’s Story: Three Years after her Bone Marrow Transplant
In 2015 I walked into a consultants room expecting some new prescription or the ‘we don't know’ I had been hearing for past seven...
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Kevin’s Story: at 70, with MDS, and an avid adventure cyclist
I was diagnosed with MDS in 2013 at the age of 64, after 18 months of various tests and investigations. I remember feeling relief...
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Medical Support for Our Charity
MDS UK Patient Support Group is affiliated with the UK MDS Forum, the foremost UK medical organisation focused upon Myelodysplastic Syndromes, providing information and advice on the status and progress of the disease research and treatment in the UK, as well as the MDS Foundation, Inc, based in the USA.
MDS UK Patient Support Group is also supported by major pharmaceutical companies and other organisations.
MDS UK Patient Support Group is a founding member of the MDS Alliance, the international umbrella group for all national support groups. The MDS Alliance is dedicated to sharing and improving information and awareness between patients, globally.
MDS UK Patient Support Group is a registered charity. Reg Charity No: 1145214
