Giving Support and Information to MDS Patients and their Families

MDS UK Patient Support Group is a Registered Charity No 1145214 - Contact Us!

Patient Stories

Kevin’s Story: at 70, with MDS, and an avid adventure cyclist

I was diagnosed with MDS in 2013 at the age of 64, after 18 months of various tests and investigations. I remember feeling relief...
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Kevin’s Story: at 70, with MDS, and an avid adventure cyclist

Kes Grant tells us how it feels to live with MDS

"I have lived with blood cancer (MDS) for 19 years, officially, being diagnosed in 2000, but I had test to query it a couple...
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Kes Grant tells us how it feels to live with MDS

Fiona Cherry MDS story: My journey to a diagnosis

In 2017 at the age of 38, I was diagnosed with Familial MDS. It came as a bit of shock and took me a...
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Fiona Cherry MDS story: My journey to a diagnosis

Rebecca’s Story: Three Years after her Bone Marrow Transplant

In 2015 I walked into a consultants room expecting some new prescription or the ‘we don't know’ I had been hearing for past seven...
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Rebecca’s Story: Three Years after her Bone Marrow Transplant
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MATERIALS AT YOUR CLINIC

Would you like to order information materials for MDS patients at your hospital?

Learn more about MDS with Our Patient Handbook: New edition!

Our Patient Handbook, has been written to help you understand more about MDS

Donate Today

Although we are a voluntary charity, we do need funds to be able to support more patients. Can you help?

Research For Patients

Medical Support for Our Charity

MDS UK Patient Support Group is affiliated with the UK MDS Forum, the foremost UK medical organisation focused upon Myelodysplastic Syndromes, providing information and advice on the status and progress of the disease research and treatment in the UK, as well as the MDS Foundation, Inc, based in the USA.

MDS UK Patient Support Group is also supported by major pharmaceutical companies and other organisations.

MDS UK Patient Support Group is a founding member of the MDS Alliance, the international umbrella group for all national support groups. The MDS Alliance is dedicated to sharing and improving information and awareness between patients, globally.

MDS UK Patient Support Group is a registered charity. Reg Charity No: 1145214

Prefer to speak on the phone? Call our helpline for an initial chat 02077337558

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