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A video presentation by senior psychotherapist, Surabhi Chaturvedi, on 'The emotional impact of a diagnosis of MDS or CMML.' Surabhi explores topics like: adjusting to the diagnosis, myths and false expectations, coping with uncertainty, the importance of peer support and offers many strategies for coping and for living well with MDS or CMML.
Try our 'Quick Links Guide' to go straight to the pages, articles and videos on our website that we believe are the most useful in those early days following diagnosis.
Questions to ask your healthcare team
It's easy to get overwhelmed by some of the complex information given at your appointments. Use this pre-prepared list of questions to help you get the answers you need.
A downloadable comprehensive MDS Guide for patients, families and care-givers which describes the various types of MDS, diagnosis, treatment and more. Co-written by the MDS UK Patient Support Group and Leukaemia Care, this guide is a brand new edition (April 2024).
As anaemia is the most common symptom of MDS and many will need transfusions at some stage, we're highlighting the importance of blood donation for MDS patients. This article also features a video presentation by Dr Matt Poynton of Oxford University Hospitals NHS Foundation Trust about blood transfusions and MDS patients. Find out more.
Help us improve patient care and support for those affected by MDS & CMML by joining our professional network. Receive updates on patient experiences, access to treatments, quality of life, research funds, and our collaborations with MDS organizations worldwide. Membership is free. Find out more
MDS UK Patient Support Group is a registered member of the ICO (Registration no: ZB332063)
MDS UK Patient Support Group is a founding member of the MDS Alliance, the international umbrella group for all national support groups. The MDS Alliance is dedicated to sharing and improving information and awareness between patients, globally.
MDS UK Patient Support Group is a registered charity (Registered charity No: 1145214)
MDS UK Patient Support Group is a registered charity (Registered charity No: 1145214)
