Patient Stories

Fiona Cherry MDS story: My journey to a diagnosis

In 2017 at the age of 38, I was diagnosed with Familial MDS. It came as a bit of shock and took me a...
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Fiona Cherry MDS story: My journey to a diagnosis

Rebecca’s Story: Three Years after her Bone Marrow Transplant

In 2015 I walked into a consultants room expecting some new prescription or the ‘we don't know’ I had been hearing for past seven...
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Rebecca’s Story: Three Years after her Bone Marrow Transplant

Adrian, husband of Emma, who was diagnosed with MDS in August 2018

Emma's diagnosis came as a shock Emma was diagnosed with MDS in August this year, which came as a bit of shock. She has...
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Adrian, husband of Emma, who was diagnosed with MDS in August 2018

Russell Cook: “The diagnosis has given me an enormous focus, it’s made my family much closer”

In 2010 I had the last of three bone marrow transplants to treat my MDS. Quite a few things have happened since then! From...
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Russell Cook: “The diagnosis has given me an enormous focus, it’s made my family much closer”

Giving Support and Information to MDS Patients and their Families

MDS UK Patient Support Group is a Registered Charity No 1145214 - Contact Us!
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MDS GLOSSARY

A handy A-Z list of words
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Learn more about MDS with Our Patient Handbook: New edition!

Our Patient Handbook, has been written to help you understand more about MDS
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Research For Patients

Vidaza / Azacitidine: Know more about this drug

Vidaza / Azacitidine: Know more about this drug

20/03/2019
New service for patients: online video consultations with an MDS specialist

New service for patients: online video consultations with an MDS specialist

14/03/2019
What is CAR-T cell therapy? Learn how this immunotherapy works in blood cancer

What is CAR-T cell therapy? Learn how this immunotherapy works in blood cancer

10/03/2019
MEDI4736: Clinical Trial Open to Recruitment

MEDI4736: Clinical Trial Open to Recruitment

16/01/2019
How is Quality of Life in patients with Myelodysplastic Syndromes (MDS) measured?

How is Quality of Life in patients with Myelodysplastic Syndromes (MDS) measured?

25/12/2018
How does Myelodysplastic Syndrome and its treatment impact on the Quality of Life of patients?

How does Myelodysplastic Syndrome and its treatment impact on the Quality of Life of patients?

17/12/2018
Vitamin C can help to correct a basic MDS problem: blood cells failing to differentiate properly

Vitamin C can help to correct a basic MDS problem: blood cells failing to differentiate properly

25/11/2018
What are the needs of patients suffering from MDS in the UK? Read the MDS UK Patient Survey Results

What are the needs of patients suffering from MDS in the UK? Read the MDS UK Patient Survey Results

15/10/2018
EPO (Erythropoietin) & other Erythropoiesis Stimulating Agents (ESAs) in the Treatment of MDS

EPO (Erythropoietin) & other Erythropoiesis Stimulating Agents (ESAs) in the Treatment of MDS

21/06/2018
MDS Treatment: Prof. David Bowen talks about genetics, where we are now and where we’re heading

MDS Treatment: Prof. David Bowen talks about genetics, where we are now and where we’re heading

05/04/2018
When is the right time to give a blood transfusion?

When is the right time to give a blood transfusion?

06/09/2017
The RIGHT treatment for the right patient at the right time – a crucial EU initiative

The RIGHT treatment for the right patient at the right time – a crucial EU initiative

07/07/2017
Can Azacitidine be administered at home? The Spanish experience

Can Azacitidine be administered at home? The Spanish experience

04/07/2017
Watch the videos from the UK MDS Forum Education Day 2016

Watch the videos from the UK MDS Forum Education Day 2016

31/03/2017
Quality of Life is an Important Treatment Goal in Patients with MDS

Quality of Life is an Important Treatment Goal in Patients with MDS

13/02/2017
Researchers find new way to target blood stem cell cancers

Researchers find new way to target blood stem cell cancers

08/02/2017
The European MDS Registry: learning about the ‘real’ MDS patients

The European MDS Registry: learning about the ‘real’ MDS patients

22/11/2016
Stored Blood is as Good as Fresh Blood Reveals Study

Stored Blood is as Good as Fresh Blood Reveals Study

28/10/2016
Blood vs Bone marrow: New technologies can reduce the need for bone marrow biopsies

Blood vs Bone marrow: New technologies can reduce the need for bone marrow biopsies

08/08/2016
Latest MDS research on the 57th Annual Meeting of the American Society of Haematology (ASH)

Latest MDS research on the 57th Annual Meeting of the American Society of Haematology (ASH)

15/07/2016

Medical Support for Our Charity

MDS UK Patient Support Group is affiliated with the UK MDS Forum, the foremost UK medical organisation focused upon Myelodysplastic Syndromes, providing information and advice on the status and progress of the disease research and treatment in the UK, as well as the MDS Foundation, Inc, based in the USA.

MDS UK Patient Support Group is also supported by major pharmaceutical companies and other organisations.

MDS UK Patient Support Group is a founding member of the MDS Alliance, the international umbrella group for all national support groups. The MDS Alliance is dedicated to sharing and improving information and awareness between patients, globally.

MDS UK Patient Support Group is a registered charity. Reg Charity No: 1145214

Prefer to speak on the phone? Call our helpline for an initial chat 02077337558

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