MDS UK Patient Support Group
Support and Information for MDS Patients and their Families
Latest updates on MDS, Coronavirus and more
Patient Stories
Christine Cain: “My inquisitive mind led to my recent MDS diagnosis!”
Christine: I have been most fortunate with my health and never had any serious health issues before My name is Christine Cain, aged 69...
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Michael Bower: “I call it ‘the condition’ as I hate using the ‘C’ word”
My name is Michael Bower, I am a 63 yr old male. I was diagnosed with MDS in September 2016. Having had trouble with...
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Will McGookin: MDS diagnosis and his interview with Sky News
MDS patient Will McGookin was delighted when a twitter post about the postponement for his chemotherapy due to Covid19 led to an exclusive interview...
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Graham Cheyne: “My CMML may give insight into a way forward in treatment”
I sat with a diagnosis of CMML, feeling perfectly well and not knowing what to ask... On the 27th of August 2019 I attended...
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Upcoming Events
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Southampton & Isle Of Wight Regional Patient Meeting – Online – 10/02/21
February 10 @ 10:00 am - 12:00 pm -
South East and East England Regional Patient Meeting – Online – 15/02/21
February 15 @ 10:30 am - 12:30 pm
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Medical Support for Our Charity
MDS UK Patient Support Group is affiliated with the UK MDS Forum, the foremost UK medical organisation focused upon Myelodysplastic Syndromes, providing information and advice on the status and progress of the disease research and treatment in the UK, as well as the MDS Foundation, Inc, based in the USA.
MDS UK Patient Support Group is also supported by major pharmaceutical companies and other organisations.
MDS UK Patient Support Group is a founding member of the MDS Alliance, the international umbrella group for all national support groups. The MDS Alliance is dedicated to sharing and improving information and awareness between patients, globally.
MDS UK Patient Support Group is a registered charity. Reg Charity No: 1145214