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Research FOR Patients
An easy to understand version of the latest medical research on MDS
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Make Blood Cancer Visible 2018 coverage from Manchester
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Make Blood Cancer Visible 2018 coverage from Wales
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Take Part in Make Blood Cancer Visible 2018 this September
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September Blood Cancer Awareness Month
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Dr Martin Wermke explains how iron overload can affect the outcome of stem cell transplant
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EPO (Erythropoietin) & other Erythropoiesis Stimulating Agents (ESAs) in the Treatment of MDS
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MDS UK Patient Support Group Newsletter – May 2018
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We’ve got seven amazing people riding the Prudential Ride London for MDS UK
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MDS Treatment: Prof. David Bowen talks about genetics, where we are now and where we’re heading
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More Good News: The Cabbage Patch 10 Mile Race
Support, Information, Awareness & Campaigns for those affected by MDS
Upcoming Events
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Oxford MDS UK Local Patient Meeting – 28/09/18
September 28 @ 10:30 am - 12:30 pm -
Support MDS UK fantastic team at the Cabbage Patch Run 2018!
October 14 -
Bournemouth MDS UK Local Patient Meeting – 07/11/18
November 7 @ 10:30 am - 1:00 pm
Take part and join the conversation:
DONATE BONE MARROW
All it takes to join the register is a bit of spit or a swab
PRINT-OUT HANDBOOK
Everything you need to know about MDS in our Patient Handbook
MDS MATERIALS AT CLINIC
Would you like to order information materials for MDS patients at your hospital?
Learn more about MDS with Our MDS Patient Handbook
Our Patient Handbook, has been written to help you understand more about MDS. Did you find the booklet helpful ? Please let us know by answering this QUESTIONNAIRE
Donate Today
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Support for the Group
The MDS UK Patient Support Group is affiliated with the UK MDS Forum, the foremost UK specialists organisation focused upon MDS, providing information and advice on the status and progress with MDS research and treatment in the UK, as well as the MDS Foundation, Inc, based in the USA. The MDS UK Patient Support Group is also supported by major pharmaceutical companies and other organisations.
The MDS UK Patient Support Group is a founding member of the MDS Alliance, the international umbrella group for all national MDS support groups. The MDS Alliance is dedicated to sharing and improving MDS information and awareness between patients, globally.MDS UK Patient Support Group is a registered charity. Reg Charity No: 1145214
Forum Latest Topics
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Facebook Posts
MDS UK Patient Support Group
1 day ago
Big thanks to Louise Lewis and Caroline Hilton for their fantastic efforts in the BURY £10k - Over £800 raised! It's not too late to sponsor them either! uk.virginmoneygiving.com/fundraiser-display/showROFundraiserPage?userUrl=LouiseLewis17&pageUrl=1 ... See MoreSee Less
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MDS UK Patient Support Group
2 days ago
A different type of post: showing how important it is for patients to have access to information they can relate to and understand. If during a consultation you don't understand something, always say so. Good effective communication with your clinical team is super important for quality of life too www.ncbi.nlm.nih.gov/pubmed/30216938/
And why support groups can help to re-explain particularly tricky information. ... See MoreSee Less
Association between health literacy, communication and psychological distress among myelodysplastic syndromes patients. - PubMed - NCBI
ncbi.nlm.nih.gov
Leuk Res. 2018 Sep 5;73:44-50. doi: 10.1016/j.leukres.2018.08.020. [Epub ahead of print]MDS UK Patient Support Group
3 days ago
This week the #MakeBloodCancerVisible campaign was in Cardiff. Thank you BBC Wales News mdspatientsupport.org.uk/make-blood-cancer-visible-2018-coverage-from-wales-this-week. ... See MoreSee Less
Make Blood Cancer Visible 2018 coverage from Wales - MDS UK Patient Support Group
mdspatientsupport.org.uk
“The Make Blood Cancer Visible campaign was set up in Cardiff during the week of 10 – 15 Sept, in Working Street. Take a look at the many photos and reactions of the public to this exhibit – and read all about the campaign on the London launch page BBC Wales evening news Make Blood …MDS UK Patient Support Group
4 days ago
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MDS UK Patient Support Group
5 days ago
Calling all Manchester based patients, friends and families of MDS community.
The Make Blood Cancer Visible campaign will move from Cardiff to Manchester this weekend.
So - come take a look - and send us back your photos and comments. Tag us, tweet about it, instagram it - bring more people to view it - to raise issues around blood cancer:
Piccadilly Gardens, Manchester 17 – 22 Sept
mdspatientsupport.org.uk/take-part-in-make-blood-cancer-visible-2018-this-september ... See MoreSee Less
Take Part in Make Blood Cancer Visible 2018 this September - MDS UK Patient Support Group
mdspatientsupport.org.uk
For a better understanding and perception of blood cancer Throughout September #BloodCancerAwarenessMonth, we will tweeting bite-size MDS Facts and results from our MDS UK survey, which assessed the status and needs of 171 MDS patients in the UK. The month-long campaign is called Make Blood Cancer V...Follow us in Twitter
Tweets by @MDS_UK