Support, Information, Awareness & Campaigns for those affected by MDS

Upcoming Events

  1. Anglia MDS UK Local Patient Meeting – 17/09/2018

    September 17 @ 10:30 am - 12:00 pm
  2. Oxford MDS UK Local Patient Meeting – 28/09/18

    September 28 @ 10:30 am - 12:30 pm
  3. Bournemouth MDS UK Local Patient Meeting – 07/11/18

    November 7 @ 10:30 am - 1:00 pm

Take part and join the conversation:

Facebook Posts

Could you help steer MDS UK as a Trustee? Do you have enthusiasm, skills to move us forward, a desire to help? If you do then get in touch with our Chairman. ... See MoreSee Less

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A lot of newly diagnosed MDS patients are in a state of shock when they find out. What were you thinking when first diagnosed? What sorts of information did you find that didn’t help? Did you have friends that actually added to that sense of dread? What made it tolerable? ... See MoreSee Less

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We often get requests for details of Patient Groups nearby. All of our patient groups are run by volunteers so we are always on the lookout for help. With MDS being rare it also means that patient groups are equally rare! If there is not one near you could you help start one? If you can then please call ... See MoreSee Less

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All it takes to join the register is a bit of spit or a swab


Everything you need to know about MDS in our Patient Handbook


Would you like to order information materials for MDS patients at your hospital?

Learn more about MDS with Our MDS Patient Handbook

Our Patient Handbook, has been written to help you understand more about MDS. Did you find the booklet helpful ? Please let us know by answering this QUESTIONNAIRE

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Although we are a voluntary charity, we do need funds to be able to support more patients. Can you help?

Support for the Group

The MDS UK Patient Support Group is affiliated with the UK MDS Forum, the foremost UK specialists organisation focused upon MDS, providing information and advice on the status and progress with MDS research and treatment in the UK, as well as the MDS Foundation, Inc, based in the USA. The MDS UK Patient Support Group is also supported by major pharmaceutical companies and other organisations.

The MDS UK Patient Support Group is a founding member of the MDS Alliance, the international umbrella group for all national MDS support groups. The MDS Alliance is dedicated to sharing and improving MDS information and awareness between patients, globally.MDS UK Patient Support Group is a registered charity. Reg Charity No: 1145214

Prefer to speak on the phone? Call our helpline for an initial chat 02077337558

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