MDS Latest News

COVID-19 vaccines and MDS: Approvals and Advice from UK MDS Forum of experts

Advice on the Covid-19 vaccines from the government and MHRA: Both Pfizer/BioNTech vaccine and Oxford University/AstraZeneca vaccines have been deemed safe for MDS patients. There are no known risks to cancer patients, or those on cancer treatment. Patients with an immune compromised system will still need to shield even after receiving the vaccine, as the […]

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Christmas Poem 2020 – by Kate D.

Christmas Poem 2020 – by Kate D. A tradition of traditions that once a year consumes us with Nutcracker images, ginger and spice, stockings and F.C., a decorated tree. But to me, I look around and see the secret of Christmas… Beauty. Lights twinkling, a sparkle of glitter and idealised childhood Christmases. I could go […]

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20for20 “Charity Shop”

Welcome to our “#20for20 Charity Shop”. This is the place where our amazing fundraisers are swapping things for donations! What an excellent way to support MDS UK! How does it work? To Donate: Take a look at the available items below and decide what you’d like to swap. More items will be added in the […]

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Myelo’s Hope Christmas Animation

Christmas is just around the corner and it will look drastically different for millions of people across the globe this year. Hope and encouragement will be needed to find safe ways of enjoying the season. Many of you will have seen Myelo’s Hope the animation we released on MDS World Awareness Day which explains MDS […]

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A novel treatment for MDS patients in need of frequent blood transfusions

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? The innovative drug  Imetelstat has been trialed on patients with lower-risk MDS who are RBC (Red Blood Cells) transfusion dependent and have experienced relapse or not been helped by erythropoiesis-stimulating agent (ESA). This group of patients does not […]

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Trial to test existing drugs against rare blood cancer

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? A new clinical trial for MDS has just been launched. Designed by clinical experts, using existing (repurposed) drugs in a new way, with wide PPI (Patient and Public Involvement) input and feedback by MDS UK advocates and patients, […]

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25th of October: MDS World Awareness Day 2020 – Take Part!

It’s time to get your pens, brushes and camera out for MDS WAD on Sunday October 25th! This is a crucial day for the worldwide MDS community to make a stand against this rare blood cancer and raise much needed awareness! We would like to encourage as many people from MDS UK as possible to […]

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