Focus on Covid: What we’ve learned for patient care

Our colleagues in the USA are offering a free webinar on Friday, May 22nd, 2020 at 15:00 UK time on the impact of COVID-19 on the care of bone marrow failure patients. Mikkael Sekeres, MD, MS will discuss issues related to the impact of COVID-19 on the care of bone marrow failure patients including the importance […]

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Are you fit and healthy? Please give blood now!

Due to the Corona pandemic there is now a severe shortage of blood products as blood donor drives across the world are being cancelled. About 70% of all patients suffering from Myelodysplastic Syndrome are anaemic and become blood transfusion dependent during the course of their disease. Since their anaemia is “refractory”, they are in need […]

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MDS UK Patient Support Group Newsletter – March 2020

Read all about: Patient’s Stories – Living with MDS:  Andy Veitch, Kevin Dwyer, Graham Cheyne, Stephen Rhodes  Patients’ Poems – by Chris Davis, Kes Grant, Kate D and Shareen Vouvray. Editor’s Note: The poem “Heavy Luggage” was written by Shareen Vouvray. We do apologise for wrongly attributing it to Chris Davis on our Newsletter. Research […]

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Coronavirus and MDS: Advice and implications for blood cancer patients

Part 1. Advice regarding the Coronavirus outbreak in UK Part 2. Implications for blood cancer patients. Updated on March 30th. Part 3. Implications for our MDS local patient group meetings Part 4. Travel precautions The information below has been taken from the NHS websites, as well as advice given by our scientific advisors, One Cancer […]

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MDS the Coronavirus (COVID-19): 15 Frequently Asked Questions

The questions below are transcribed from the AAMDSIF webinar which took place on March 13, 2020 with Dr. Mikkael Sekeres and Dr. Isabel Schuermeyer from the Cleveland Clinic, edited for clarity and brevity. Thanks to our colleagues from AAMDSIF for sharing this with us. With respect to the guidelines for your specific case, the NHS […]

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