MDS Latest News
Advice on a 3rd Covid-19 vaccine for immunosuppressed patients: We attended a special briefing from NHS England, where it was explained that patients who are immunocompromised would be offered a 3rd COVID vaccine, maybe even a 4th one, in the hope to trigger an increased response to the vaccine. This step is necessary, as some […]
Read full story
2020 was a difficult time for everyone especially small charities. So 20 small charities came together to brainstorm and the result was to do 20 challenges over 20 days. For MDS UK the campaign proved immensely successful. 943 supporters and MDS patients raised £37,461 which allowed us to keep supporting MDS patients during the pandemics. […]
Read full story
More than a million people are diagnosed with blood cancer around the world every year – yet there is still relatively low awareness of it. Get involved in the MDS Alliance’s #LetsTalkAboutBloodCancer campaign, and help support the fight against blood cancer.
Read full story
A person’s health condition has a huge impact on the quality of life of the person, but also on their partner and family members. This impact has been largely ignored. Researchers at Cardiff University have created a questionnaire, the Family Reported Outcome Measure (FROM-16), to assess this impact. This questionnaire needs further testing and this can only […]
Read full story
The largest half marathon in the world, is taking place this year! To allow for social distancing, this September it will start and finish in Newcastle with runners crossing the Tyne Bridge twice. Russell Cook Laura Feenan and Matthew Hall Vicky Blackshaw Robert Handy Hatti Kirby Ash Greenhalgh Declan Brady Jamie Ford Jess Richards Ash Greenhalgh […]
Read full story
On the 30th July Nick Harpur set off from Land’s End in the direction of John O’Groats. He was planning to follow the GB Divide route, a 2000km (600km off-road) route that snakes its way up through England, Wales and Scotland via small lanes, drove roads and spectacular mountain passes, with 27,000 metres of climbing. […]
Read full story
Surabhi Chaturvedi, Psychotherapist at King’s College Hospital NHS Foundation Trust’s Haematology Department, blogs about the emotional impact of being diagnosed with a blood cancer and the importance of supporting people’s mental wellbeing throughout the course of their illness. Although all serious health conditions have a psychological impact, blood cancers present some specific challenges. Some of […]
Read full story
On the 19th of July we had an informative conversation with Dr Austin Kulasekararaj, Consultant Haematologist, King’s College Hospital, London, on issues and concerns around COVID-19 “Freedom Day” and the efficacy of the Covid vaccine for MDS patients. Watch the video and read the excerpts below. “Obviously today is a big day, it’s called Freedom […]
Read full story
Following the announcement of the lifting in England of all COVID-19 restrictions from July 19th, the Government has issued new Guidance for people classed as Clinically Extremely Vulnerable (CEV), including all MDS patients. The full Guidance can be found here: Guidance on shielding and protecting people who are clinically extremely vulnerable from COVID-19 We continue […]
Read full story
Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? The British Society of Haematology has now issued their 2021 updated Guidelines for Myelodysplastic Syndromes (MDS). These guidelines are written by experts in MDS and destined to be used by all UK haematologists to assist in the optimal […]
Read full story