MDS Latest News
For the time being at least, we are planning to continue meeting on Zoom, rather than face-to-face. However, we are aware that if you have a hearing impairment, you may have missed registering for our Zoom meetings because you were worried you would not be able to hear what people were saying. Good […]
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The UK MDS Forum is a UK specialist group of haematologist, which works extensively with other MDS experts worldwide. Its haematologists are MDS experts and have extensive experience treating MDS patients. They can work with your local haematologist to offer you the best possible care and advice. Under NHS rules, you are free to seek […]
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To those new to MDS: We are a small charity dedicated to supporting patients and families affected by a rarer type of blood cancer. This is a fantastically rewarding type of work, where no 2 days are ever the same. Being a small team – there are plenty of opportunities to improve and shape the […]
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We are always looking for enthusiastic new volunteers to help with various aspects of our expanding patient services Have you or your loved one benefited from helpful information, support, or other services from MDS UK? Would you like to be part of a team of enthusiastic volunteer MDS Ambassadors to help maintain our vital services […]
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We are excited to announce that we have free places for the Brighton Marathon Weekend 2023! Two great running events are taking place on Sunday 2nd of April 2023: the Brighton Marathon and BM 10K and we have 9 places in each race! When: 02.04.2023 Where: through Brighton city centre, along its glorious seafront Entry […]
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Developed with clinical leaders, the proposals – supported by NHS staff as well as patient groups and cancer charities – aim to simplify and update cancer standards, based on the recommendations of the Independent Cancer Taskforce. Patients, clinicians and the public are asked to share their views on the proposed standards, with a report setting […]
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In March 2020, the country was hit by the worst pandemic in a hundred years, changing all our lives dramatically. In many ways, people living with blood cancer have been uniquely impacted by the COVID-19 pandemic. Whilst in the last decade there has been hardwon progress on blood cancer survival, the pandemic has placed this […]
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A 3rd dose and booster dose (4th dose) of the coronavirus (COVID-19) vaccine is being offered to people aged 12 and over who had a severely weakened immune system when they had their first 2 doses. This includes patients who had or have a blood cancer such as MDS or CMML and patients who had […]
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Dear MDS patients, At the end of February we sent out a postal letter to all patients without internet access. The postal letter included the latest Covid instructions. We include these instructions here so that you can read them carefully and follow them to increase your protection. We are aware that not all MDS patients […]
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Sajid Javid announced today (03/03/22) that Lateral Flow Tests and PCR tests will remain free of charge for vulnerable patients after 1st April 2022. All blood cancer charities are now requesting clarifications about which patient groups exactly will be entitled to the free tests. We are also calling for free tests for friends, families and […]
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