MDS Latest News

COVID-19 vaccines and MDS: Approvals and Advice

Advice on a 3rd Covid-19 vaccine for immunosuppressed patients: We attended a special briefing from NHS England, where it was explained that patients who are immunocompromised would be offered a 3rd COVID vaccine, maybe even a 4th one, in the hope to trigger an increased response to the vaccine. This step is necessary, as some […]

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Be our hero! Join our 20:20 campaign and fundraise for MDS UK

2020 was a difficult time for everyone especially small charities. So 20 small charities came together to brainstorm and the result was to do 20 challenges over 20 days. For MDS UK the campaign proved immensely successful. 943 supporters and MDS patients raised £37,461 which allowed us to keep supporting MDS patients during the pandemics. […]

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Let’s Talk About Blood Cancer

More than a million people are diagnosed with blood cancer around the world every year – yet there is still relatively low awareness of it. Get involved in the MDS Alliance’s #LetsTalkAboutBloodCancer campaign, and help support the fight against blood cancer.

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What is the impact of MDS on your family?

A person’s health condition has a huge impact on the quality of life of the person, but also on their partner and family members. This impact has been largely ignored. Researchers at Cardiff University have created a questionnaire, the Family Reported Outcome Measure (FROM-16), to assess this impact. This questionnaire needs further testing and this can only […]

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An amazing team is running the Great North Run on September 12 for MDS UK!

The largest half marathon in the world, is taking place this year! To allow for social distancing, this September it will start and finish in Newcastle with runners crossing the Tyne Bridge twice. Russell Cook Laura Feenan and Matthew Hall Vicky Blackshaw Robert Handy Hatti Kirby Ash Greenhalgh Declan Brady Jamie Ford Jess Richards Ash Greenhalgh […]

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Blood cancer: supporting mind and body

Surabhi Chaturvedi, Psychotherapist at King’s College Hospital NHS Foundation Trust’s Haematology Department, blogs about the emotional impact of being diagnosed with a blood cancer and the importance of supporting people’s mental wellbeing throughout the course of their illness. Although all serious health conditions have a psychological impact, blood cancers present some specific challenges. Some of […]

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COVID vaccine efficacy and MDS: In conversation with Dr Austin Kulasekararaj

On the 19th of July we had an informative conversation with Dr Austin Kulasekararaj, Consultant Haematologist, King’s College Hospital, London, on issues and concerns around COVID-19 “Freedom Day” and the efficacy of the Covid vaccine for MDS patients. Watch the video and read the excerpts below. “Obviously today is a big day, it’s called Freedom […]

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