MDS Latest News

A novel treatment for MDS patients in need of frequent blood transfusions

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? The innovative drug  Imetelstat has been trialed on patients with lower-risk MDS who are RBC (Red Blood Cells) transfusion dependent and have experienced relapse or not been helped by erythropoiesis-stimulating agent (ESA). This group of patients does not […]

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Trial to test existing drugs against rare blood cancer

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? A new clinical trial for MDS has just been launched. Designed by clinical experts, using existing (repurposed) drugs in a new way, with wide PPI (Patient and Public Involvement) input and feedback by MDS UK advocates and patients, […]

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25th of October: MDS World Awareness Day 2020 – Take Part!

It’s time to get your pens, brushes and camera out for MDS WAD on Sunday October 25th! This is a crucial day for the worldwide MDS community to make a stand against this rare blood cancer and raise much needed awareness! We would like to encourage as many people from MDS UK as possible to […]

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How have you coped over the past few months of COVID-19? Please let us know

MDS UK has teamed up with the NCRI MDS subgroup (National Cancer Research Institute), the UK MDS Forum (National MDS clinical experts group), and created a survey for MDS, CMML and AML patients and caregivers. This national survey is about your perspective and experience of the COVID-19 pandemic generally the clinical care and support you […]

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News for MDS patients from the European Registry

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? The best way to study a typical group of MDS patients is to set up a registry. A registry involves obtaining consent from patients and collect information about their MDS and the treatments they receive at their usual […]

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20for20 “Charity Shop”

Welcome to our “#20for20 Charity Shop”. This is the place where our amazing #20for20 fundraisers are swapping things for donations! What an excellent way to support MDS UK! How does it work? To Donate: Take a look at the available items below and decide what you’d like to swap. More items will be added in […]

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20for20 Gallery

Welcome to MDS UK’s #20for20 gallery! Here, you can have a look at what some of our wonderful participants have been up to in the campaign. Whether it be running, litter-picking, hula-hooping or poetry, our #20for20 fundraisers are doing amazingly well! We hope this page inspires more people to join MDS UK in the #20for20 campaign or […]

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David P. Steensma, MD, looks for a novel therapy to treat TP53-Mutant MDS

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? TP53 gene mutations or chromosome 17 loss which results in TP53 deletion is present in up to 20% of MDS patients. Therapies for these patients have been relatively unsuccessful in delaying the progression of the disease. Emerging treatments […]

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