MDS UK is taking part in the 20:20 Campaign with other rare cancer charities impacted by the Covid19 pandemic. Participants simply must complete one “20” themed challenge (e.g. “20 minutes walking”, “20 cakes in 20 days”) a day starting on September 20th and encourage friends and family to sponsor them. The challenges DO NOT have […]

MDS UK Chairman, Ted Peel, and his grandson, Romain, are set to receive stem cell transplants within weeks of each other. They want to raise awareness, encourage people to become stem cell donors and generate essential financial support for MDS UK and Teenage Cancer Trust Ex-lawyer Ted was diagnosed with MDS in 2015 following extreme […]

It doesn’t seem likely that we shall be able to resume face-to-face meetings for a while yet. But we are keen to maintain our services to you, and provide you with all the regular news about MDS, as well as giving you an opportunity to connect to one another virtually. We know how important patient […]

Our colleagues in the USA have produced an inspiring video as part of their international Patient & Family conference on this past weekend. In the video, American television broadcaster and MDS patient Robin Roberts talks to Gail J. Roboz, MD is professor of medicine and director of the Clinical and Translational Leukemia Program at the […]

The coronavirus pandemic has affected everyone associated with our MDS UK charity. We have a committed team of staff and committee members, working tirelessly on a virtual basis to provide excellent care to those who need us most. Our office and headquarters are based at King’s College Hospital in South London, one of the largest […]

As you may already know, The Great North Run – one of MDS UK’s biggest annual fundraisers was sadly postponed due to the Covid19 pandemic. Fortunately, the organisers have devised an excellent way to keep you running and raising essential funds for our life-changing work: The Great Run Solo, a virtual running challenge to keep […]

The service is not open for new registrations at the moment, because people aren’t being advised to shield in most of England from 1 August 2020. The last boxes of food and basic supplies will be sent out by 31 July. If you’ve already registered and got priority access to supermarket deliveries, you’ll keep it. Contact […]

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? A recent article in the American Society of Hematology (ASH) Clinical News has identified how, for too many years and despite its unique clinical and biological characteristics, CMML (Chronic Myelomonocytic Leukaemia) has been treated as a form of […]

Do you have a few minutes to help the Blood Cancer Alliance (BCA) with this patient survey about access to medicines and treatment in the UK?  The Blood Cancer Alliance would love to hear from patients, families and carers about their experiences. The survey will close on 1st of July! Please take part in this […]