MDS Latest News

SOAP Study – Vaccine efficacy study – enrolling MDS patients now

King’s College Hospital has secured further funding to monitor more MDS patients, as part of the SOAP study. This study is going to measure how effective the vaccines are in blood cancer patients and specifically MDS patients, as initial results have shown that the vaccines may not be as effective as in the general population. […]

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Good News for Cancer Patients: ‘Covid-Friendly’ Cancer Care At Home Extended

Thousands of people with cancer can benefit from ‘Covid friendly’ treatments from home, the NHS announced today. More than 30 different drugs are available to treat patients, offering benefits such as fewer hospital visits or a reduced impact on their immune system. Around 8,000 people have already benefitted from the treatment ‘swaps’ since April helping […]

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How are Electronic Patient Notes Accessed in Clinical Trials?

The Medicines and Healthcare products Regulatory Agency (MHRA), the agency responsible for ensuring that medicines work and are safe, is organising a online meeting on Wednesday 31 March from 10:00 – 11:30am to ask patients and patients representatives about a new guidance for accessing electronic patient notes in clinical trials. They have said to us: This is […]

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Call for review of COVID vaccine timings for blood cancer patients

Following the publication of emerging evidence that the Pfizer COVID vaccines are less effective for cancer patients after a single dose, the Blood Cancer Alliance (BCA) has today written to the Joint Committee on Vaccination and Immunisation (JCVI) asking them to review the case for a reduction in the 12-week delay between vaccination doses for […]

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What is the latest on MDS UK funded research?

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? MDS UK has great pleasure to provide the first update on the PhD research post we started funding in January 2020. This post was made possible, thanks to legacies and donations received by our charity. This update introduces […]

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Immune response to COVID-19 reduced in patients with blood cancers

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? Patients with blood cancers such as leukaemia vary in their immune response to COVID-19 and can struggle to clear infection for very many weeks, according to new research published in Cancer Cell. By contrast, most patients with solid tumours, […]

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COVID-19 vaccines and MDS: Approvals and Advice from UK MDS Forum of experts

Advice on the Covid-19 vaccines for MDS Patients: Both Pfizer/BioNTech vaccine and Oxford University/AstraZeneca vaccines have been deemed safe for MDS patients. There are no known risks to cancer patients, or those on cancer treatment. Patients with an immune compromised system will still need to shield even after receiving the vaccine, as the protection may […]

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