MDS Latest News
Full latest update online can be found here: https://www.gov.uk/government/publications/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19 Below is the exact text provided by the government. Mainly, announcing that shielding is paused. However, we still advise to be extra cautious, whilst we wait for more robust results about the efficacy of the vaccines in blood cancer patients, and specifically MDS patients. The SOAP […]
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Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? Thalassemia and MDS are both rare diseases that prevent a person from producing enough healthy red blood cells. Low levels of healthy red blood cells, known as anemia, result in less oxygen being delivered to different parts of […]
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Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? Platelets are disc-shaped elements in the blood that assist in blood clotting. During normal blood clotting, the platelets clump together (aggregate). A normal platelet count in a healthy individual is between 150,000 and 450,000 per microlitre of blood. […]
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The Cabbage Patch Race… You are probably wondering why it’s got such a funny name! Well, it’s named after the Cabbage Patch Pub in Twickenham, a well-known haunt of anybody who is a rugby fan going to the world-famous Stadium. The race itself was originally set up by the owners of the Cabbage Patch Pub […]
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Following news on the extremely rare risk of blood clots/thrombosis in patients who had the Astra Zeneca vaccine, we are posting several statements by the MHRA, JCVI and BSH on this topic. We have also asked a number of MDS experts, whether MDS patients should be concerned. The consensus from the MDS experts is that […]
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King’s College Hospital has secured further funding to monitor more MDS patients, as part of the SOAP study. This study is going to measure how effective the vaccines are in blood cancer patients and specifically MDS patients, as initial results have shown that the vaccines may not be as effective as in the general population. […]
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Thousands of people with cancer can benefit from ‘Covid friendly’ treatments from home, the NHS announced today. More than 30 different drugs are available to treat patients, offering benefits such as fewer hospital visits or a reduced impact on their immune system. Around 8,000 people have already benefitted from the treatment ‘swaps’ since April helping […]
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The Medicines and Healthcare products Regulatory Agency (MHRA), the agency responsible for ensuring that medicines work and are safe, is organising a online meeting on Wednesday 31 March from 10:00 – 11:30am to ask patients and patients representatives about a new guidance for accessing electronic patient notes in clinical trials. They have said to us: This is […]
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Now that most people in the Clinically Extremely Vulnerable Group have been vaccinated, it’s vital that we report any side effects from the vaccines. This is even more important for MDS patients. Immunocompromised people were not included in the clinical trials of the vaccines, so there is a possibility that some MDS patients may respond in […]
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Following the publication of emerging evidence that the Pfizer COVID vaccines are less effective for cancer patients after a single dose, the Blood Cancer Alliance (BCA) has today written to the Joint Committee on Vaccination and Immunisation (JCVI) asking them to review the case for a reduction in the 12-week delay between vaccination doses for […]
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