MDS Latest News

Important Update about our Online Patient Meetings

For the time being at least, we are planning to continue meeting on Zoom, rather than face-to-face.   However, we are aware that if you have a hearing impairment, you may have missed registering for our Zoom meetings because you were worried you would not be able to hear what people were saying.   Good […]

Read full story

Would you like to see an MDS Specialist?

The UK MDS Forum is a UK specialist group of haematologist, which works extensively with other MDS experts worldwide. Its haematologists are MDS experts and have extensive experience treating MDS patients. They can work with your local haematologist to offer you the best possible care and advice. Under NHS rules, you are free to seek […]

Read full story

MDS UK is recruiting!

To those new to MDS: We are a small charity dedicated to supporting patients and families affected by a rarer type of blood cancer. This is a fantastically rewarding type of work, where no 2 days are ever the same. Being a small team – there are plenty of opportunities to improve and shape the […]

Read full story

Volunteer With Us

We are always looking for enthusiastic new volunteers to help with various aspects of our expanding patient services Have you or your loved one benefited from helpful information, support, or other services from MDS UK? Would you like to be part of a team of enthusiastic volunteer MDS Ambassadors to help maintain our vital services […]

Read full story

Brighton Marathon 2023 – Register to Run for MDS UK!

We are excited to announce that we have free places for the Brighton Marathon Weekend 2023! Two great running events are taking place on Sunday 2nd of April 2023: the Brighton Marathon and BM 10K and we have 9 places in each race! When: 02.04.2023 Where: through Brighton city centre, along its glorious seafront Entry […]

Read full story

Take part in an NHS consultation on new standards to diagnose cancers earlier

Developed with clinical leaders, the proposals – supported by NHS staff as well as patient groups and cancer charities – aim to simplify and update cancer standards, based on the recommendations of the Independent Cancer Taskforce. Patients, clinicians and the public are asked to share their views on the proposed standards, with a report setting […]

Read full story

3rd & 4th doses COVID-19 vaccination for MDS patients

A 3rd dose and booster dose (4th dose) of the coronavirus (COVID-19) vaccine is being offered to people aged 12 and over who had a severely weakened immune system when they had their first 2 doses. This includes patients who had or have a blood cancer such as MDS or CMML and patients who had […]

Read full story

Letter to Members with Updated Advice on Covid-19 for MDS Patients

Dear MDS patients, At the end of February we sent out a postal letter to all patients without internet access. The postal letter included the latest Covid instructions. We include these instructions here so that you can read them carefully and follow them to increase your protection. We are aware that not all MDS patients […]

Read full story
Free donations by shopping

Sign-up to Download our Free Patient Handbook!

You have successfully subscribed to the newsletter

There was an error while trying to send your request. Please try again.

MDS UK Patient Support Group will use the information you provide on this form to be in touch with you and to provide updates.