MDS Latest News

Take Part in this Important Patient Survey. Deadline: 31/07/2021

Last chance to provide answers to the inquiry led by the APPG on Blood Cancer and the APPG of Stem Cell Transplantation about the impact of Covid-19 on blood cancer services. Please complete the survey here: https://www.smartsurvey.co.uk/s/2Y0DO1/ Deadline is 31st July 2021 This survey is for submitting written evidence to the inquiry into the impact of […]

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COVID vaccine efficacy and MDS: In conversation with Dr Austin Kulasekararaj

On the 19th of July we had an informative conversation with Dr Austin Kulasekararaj, Consultant Haematologist, King’s College Hospital, London, on issues and concerns around COVID-19 “Freedom Day” and the efficacy of the Covid vaccine for MDS patients. Watch the video and read the excerpts below. “Obviously today is a big day, it’s called Freedom […]

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He shoots, he scores! He saves a life! Hero England fan!

This story is now making headlines, thanks to the selfless and generous attitude of Sam Astley, who opted to donate his stem cells instead of attending the England football match! Sam decided to register as a stem cell donor, thank to our long term MDS UK Patient Support Group member Simon Wilkes, who was diagnosed […]

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Silence Therapeutics

The pharma company Silence Therapeutics organised an international event in June with their employees, their #MonthToMove, challenging the Silence team to get ‘moving’ for their partner patient groups, with a pound donated by Silence for every kilometre covered. The team collectively covered 8,558km, meaning Silence will donate £8,558 spread across their seven core charity partners. […]

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Important news for MDS patients: Government update for the extremely vulnerable, 3/6/2021

Full latest update online can be found here: https://www.gov.uk/government/publications/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19 Below is the exact text provided by the government. Mainly, announcing that shielding is paused. However, we still advise to be extra cautious, whilst we wait for more robust results about the efficacy of the vaccines in blood cancer patients, and specifically MDS patients. The SOAP […]

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