QoL (Quality of Life ) in High-Risk MDS & AML: A recorded Zoom session with specialist consultants & MDS UK patients. On December 15th 2022, Dr Pramila Krishnamurthy, and her colleagues Dr Beth Payne, and Dr Ian Thomas, led this valuable session introducing their research project on QoL (Quality of Life ) in High-Risk MDS & AML to a group of MDS UK patients. The presentation was followed by Q&As.

On 27th January 2023 Professor Manoj Raghavan, Consultant haematologist, University Hospital Birmingham and a team of specialists involved in Repair MDS, will be leading a presentation via Zoom on Low-Risk MDS. The topics covered will include; the standard treatments available, the trials for this type of MDS and the new clinical trial Repair MDS, using re-purposed drugs. The meeting would be of interest to patients with Low-Risk MDS, ‘watch & wait’ or pre-MDS. This meeting will be recorded and available on the website later.

King’s Health Partners Haematology are looking for two patient/carer representatives to sit on the KHP Haematology programme board. Interested patients/carers should register their interest by contacting becky.barnes@kcl.ac.uk / 07773 147379 by 31st January 2023. 

A recording of a valuable session on Low risk MDS by Dr Dominic Culligan, consultant haematologist at Aberdeen Royal Infirmary, to a large group of MDS UK patients. The presentation is followed by Q&As between Dr Culligan and the group of patients. The recording is approximately 1hr 50m.

Can you imagine being diagnosed with a condition and your healthcare team omitting to mention it is a type of cancer? Yet this has been the case for some people […]

MDS is difficult to diagnose so by raising awareness of the signs and symptoms and taking action to get a blood test, this year’s MDS World Awareness Day aims to improve diagnosis.  As with all cancers, fast action enables better treatment and faster diagnosis.

This is the third year Christine Peel and her grandchildren have produced beautiful Christmas cards in aid of MDS UK. We’re sure you’ll love this year’s designs.

NHS Blood and Transplant (NHSBT) has declared an amber alert on its blood stocks which are running dangerously low, and a call is going out for people to make emergency donations.

  September is Blood Cancer Awareness Month and this year, the MDS Alliance is running a 4-week campaign #ThinkMDS. #ThinkMDS aims to raise awareness of blood cancer, and specifically MDS, […]

A reminder of our upcoming MDS UK Annual General Meeting on Zoom (open to all members Nationwide) on Friday Dec 2nd 2022 3pm-4pm.