MDS Latest News

Bone marrow donor drive at RAF Coningsby

On Thursday 22nd of November MDS UK was represented at a bone marrow donor drive at RAF Coningsby alongside the bone marrow donor charity, DKMS. The event was prompted by the husband of Emma Sheldon, Adrian Cooper, following his wife’s diagnosis of MDS. As a great number of patients will know, the initial emotions that […]

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MDS UK Patient Support Group Newsletter – November 2018

Read all about: Patient’s Stories: Kes Grant ‘Coping with long stays in hospitals…’; Andrew Scott Married to MDSDS; Tilly Tilbrook ‘How I felt about losing my hair…’; Christina Fowler ‘Decisions, decisions…’ Research: Prof D Wiseman Chronic Myelomonocytic Leukaemia (CMML), Prof D Steensma, Measuring quality of life; Prof T Chevassut The effects of vitamin C, Raqeebah […]

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The European MDS Registry: learning about the ‘real’ MDS patients

Research FOR PatientsFor an informed and empowered opinionand an improved consultationHave you made your clinical paper accessible yet? By Prof. David Bowen In order to develop new drugs to treat MDS, clinical trials are mandatory, typically testing the new drug against the treatment that is considered to be the standard at that time. However patients […]

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Catch up on the Cabbage Patch 10 Mile Race 2018: The Highlights

By Russell Cook, runner, ex-MDS Patient and Deputy Chairman Trustee & Director of MDS UK Patient Support Group Sunday 14 October saw MDS UK represented at the iconic Cabbage Patch 10 mile race. You are probably wondering why it’s got such a funny name! Well, it’s named after the Cabbage Patch Pub in Twickenham, a […]

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Make Blood Cancer Visible: The Patient Stories

Why are we campaigning to Make Blood Cancer Visible? September is blood cancer awareness month and we are working together to #MakeBloodCancerVisible. Blood cancer affects 240,000 adults and children in the UK and claims more lives each year than either breast or prostate cancer. Yet, blood cancer does not get the priority and recognition it […]

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Make Blood Cancer Visible Campaign in Edinburgh from 24 to 29 September

Mon 24th – Sat 29th Sept: Waverly Mall, Edinburgh, EH1 1BQ “This last week of September 2018, the Make Blood Cancer Visible campaign has moved to Edinburgh, to highlight the need for better blood cancer awareness in Scotland specifically. Please come and visit the exhibit at Waverley Mall and learn more about how blood cancers […]

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