MDS Latest News
The American Society of Haematology (ASH) have published some very interesting articles about various aspects of MDS and the potential effectiveness of a number of treatments.
Read full storyIf you are listed as a vulnerable or disabled person, due to MDS or any other condition, and your local water authority has imposed a hosepipe ban, please contact their customer service department and ask to be added to their priority service register. Certain exceptions apply to the hosepipe ban in the case of older/vulnerable […]
Read full storyThe drug Evusheld has been approved by the MHRA (Medicines and Healthcare products Regulatory Agency), but the government has not yet made a decision whether to make it available to patients. We are continuing to monitor the access issues and joining the request of all blood cancer charities to make this drug available to […]
Read full storyHelp us to improve the lives of everyone affected by MDS by volunteering your time and experience. Volunteers play a vital role in MDS UK; the expertise and time given from all our volunteers is hugely valued and makes a big difference to our charity. We simply could not do what we do without you. […]
Read full storyTry our newly upgraded Chat Forum, it’s the perfect answer! Whether you are a lapsed user, or new member – do give it a try! Leave a new message in one of the folders, ask a question, respond to a message that’s already there or just say hi!
Read full storyThe Birmingham Football Association has just announced their collaboration with our amazing ambassador Simon Wilkes and charity partner Anthony Nolan. Simon will be working with the FA to increase the number of people registered as a Stem Cell donor across the West Midlands and Warwickshire using Grassroots Football as a stimulus for individual recruitment. […]
Read full storyTechnically speaking, no MDS or CMML patients should have issues accessing vaccines or anti-COVID19 medication.
If however, you encounter problems, do point any GPs to the document below, which is a new list identifying exactly and precisely who the highest at risk patients are, in terms of COVID-19 infection. MDS, CMML and transplant patients are all listed.
Read full storyCOVID-19 is not yet over for blood cancer, as you all know. Access to medication and services has been difficult, in the UK, and other countries. The International COVID-19 Blood Cancer Coalition (ICBCC) has updated their website in May – with further supporters for the cause, and a call for action. We urge you […]
Read full storyThe sun was shining for our trio riding for MDS on Sunday 29 May – Tim Woolley, Adrian Skardhamer and Alexander Myers – all cycled 100 miles in the RideLondon-Essex 100 challenge in support of our charity! Our brilliant riders arrived within an hour of each other.
Read full storyAfter a busy period recruiting, we have now filled all our advertised positions and are delighted to say we have 3 new people joining our team!
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