MDS Latest News

Advice regarding hosepipe bans and water shortages

  If you are listed as a vulnerable or disabled person, due to MDS or any other condition, and your local water authority has imposed a hosepipe ban, please contact their customer service department and ask to be added to their priority service register.   Certain exceptions apply to the hosepipe ban in the case of older/vulnerable […]

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Evusheld is approved in UK for prophylaxis in immunocompromised people

  The drug Evusheld has been approved by the MHRA (Medicines and Healthcare products Regulatory Agency), but the government has not yet made a decision whether to make it available to patients. We are continuing to monitor the access issues and joining the request of all blood cancer charities to make this drug available to […]

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Volunteers needed!

Help us to improve the lives of everyone affected by MDS by volunteering your time and experience. Volunteers play a vital role in MDS UK; the expertise and time given from all our volunteers is hugely valued and makes a big difference to our charity. We simply could not do what we do without you.  […]

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New UK CEV list identifies highest at-risk patients for COVID-19 infection

Technically speaking, no MDS or CMML patients should have issues accessing vaccines or anti-COVID19 medication.

If however, you encounter problems, do point any GPs to the document below, which is a new list identifying exactly and precisely who the highest at risk patients are, in terms of COVID-19 infection. MDS, CMML and transplant patients are all listed.

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Read the ICBCC Impact Statement and forward letter to your MP

  COVID-19 is not yet over for blood cancer, as you all know. Access to medication and services has been difficult, in the UK, and other countries. The International COVID-19 Blood Cancer Coalition (ICBCC) has updated their website in May – with further supporters for the cause, and a call for action. We urge you […]

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A fantastic day at RideLondon 2022

The sun was shining for our trio riding for MDS on Sunday 29 May – Tim Woolley, Adrian Skardhamer and Alexander Myers – all cycled 100 miles in the RideLondon-Essex 100 challenge in support of our charity! Our brilliant riders arrived within an hour of each other.  

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MDS UK has new recruits!

After a busy period recruiting, we have now filled all our advertised positions and are delighted to say we have 3 new people joining our team!

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