Watch the recorded webinar on the REPAIR-MDS Clinical Trial and Low-risk MDS

 

Below is a recorded zoom presentation about Low-risk MDS & the REPAIR-MDS clinical trial. The discussion was hosted by the MDS Patient Support Group with presentations by the clinical trial investigators Dr Manoj Raghavan, Dr Stephen Jenkins, Dr Farhat Khanim and Professor Chris Bunce. The video gives valuable information about the trial and its potential benefits for patients with low-risk MDS.

The topics include:

  • the current treatment options for Low-Risk MDS
  • a description of the REPAIR-MDS clinical trial and the general clinical trial processes
  • explanations of: eligibility for the trial, expectations, treatment periods, schedule of events, importance of completing the trial and where to find out about the progress of the trial.
  • The presentation was followed by Q&As with a large group of MDS patients.

 

 

Low-risk MDS & the REPAIR-MDS clinical trial

The meeting was held on 27th January 2023 and was chaired by Sophie Wintrich, CEO and Trustee of MDS UK Patient Support Group. For more on the specialist speakers, see their profiles below.

Specialist speakers

Dr Pramila Krishnamurthy, Consultant Haematologist King's College Hospital, London

Dr Manoj Raghavan is Co-Chief Investigator on the REPAIR-MDS trial in low/ intermediate risk MDS. He is a consultant haematologist based at the Centre for Clinical Haematology.

MDS Patient Support

Dr Stephen Jenkins is Co-Chief Investigator on the REPAIR-MDS trial and consultant haematologist at Russells Hall Hospital, Dudley.

Dr Farhat Khanim is Co-investigator on the REPAIR-MDS trial and is a translational cancer biologist at the School of Biosciences University of Birmingham.

Professor Chris Bunce is Professor of Translational Cancer Biology and Head of Research. He directs a translational research group dedicated to the development of novel therapies for leukaemias and lymphomas at the School of Biosciences University of Birmingham

Further information about the REPAIR-MDS Clinical Trial

  • Improving outcomes for people with MDS - an article by Dr Stephen Jenkins on the Blood Cancer UK website with a very clear explanation of the REPAIR-MDS clinical trial.

  • REPAIR-MDS Clinical Trial -  The website of the University of Warwick, Clinical Trials Unit  with up-to-date information about the trial and contact details of the trial team. 
  • ClinicalTrials.gov -  Updated details of the trial on ClinicalTrials.gov website 
  • ISRCTN registration of REPAIR-MDS trial  - Entry of the REPAIR-MDS trial in the ISRCTN registry. (The ISRCTN registry is a primary clinical trial registry recognised by WHO and ICMJE)

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