MDS Latest News

What’s your MDS type? Read patients stories & watch the animations

On 25th October, MDS World Awareness Day, we shared personal stories and great animations about the different types of MDS – produced by our colleagues at the MDS Alliance – to shed light on this important topic and help educate patients, caregivers, healthcare professionals, and the general public on it. Godfrey Bell’ Story I don’t […]

Read full story

SOAP Study: How effective is the COVID Vaccine for MDS patients?

King’s College Hospital has been monitoring 38 MDS patients, as part of the SOAP study. The study has been measuring how effective the vaccines are in blood cancer patients and, specifically in these MDS patients, as initial results shown that COVID-19 vaccines may not be as effective in these patients as in the general population.

Read full story

Shielding for the Clinically Extremely Vulnerable has ended. What is the impact on working age blood cancer patients?

The repercussions of the government’s decision to end the shielding programme for Clinically Extremely Vulnerable (CEV) people are severe and multi-facetted. Most of the Clinically Extremely Vulnerable group, such as, for example, blood cancer patients, are still at very high risk of contracting COVID-19, as early research has indicated that the vaccines may not be […]

Read full story

Brighton Marathon and 10k Race 2022: Calling all Runners!

We are excited to announce that we have free places for the Brighton Marathon Weekend 2022 Two great running events are taking place on the 10th of April 2022: the Brighton Marathon and BM 10K and we have 5 places in each race! When: 10.04.2022 Where: through Brighton city centre, along its glorious seafront Entry […]

Read full story

New survey to evaluate antibody response in individuals with cancer

The National COVID Cancer Survey is evaluating antibody tests in individuals with cancer.  This is Phase 1 of a large nationwide NHS England project. It will evaluate finger prick COVID antibody testing in 10,000 individuals with cancer. Who is currently eligible to enter this trial? If you live in England, have been diagnosed with cancer in […]

Read full story

Be our hero! Join our 20:20 campaign and fundraise for MDS UK

2020 was a difficult time for everyone especially small charities. So 20 small charities came together to brainstorm and the result was to do 20 challenges over 20 days. For MDS UK the campaign proved immensely successful. 943 supporters and MDS patients raised £37,461 which allowed us to keep supporting MDS patients during the pandemics. […]

Read full story

Let’s Talk About Blood Cancer

More than a million people are diagnosed with blood cancer around the world every year – yet there is still relatively low awareness of it. Get involved in the MDS Alliance’s #LetsTalkAboutBloodCancer campaign, and help support the fight against blood cancer.

Read full story

What is the impact of MDS on your family?

A person’s health condition has a huge impact on the quality of life of the person, but also on their partner and family members. This impact has been largely ignored. Researchers at Cardiff University have created a questionnaire, the Family Reported Outcome Measure (FROM-16), to assess this impact. This questionnaire needs further testing and this can only […]

Read full story