A 3rd dose and booster dose (4th dose) of the coronavirus (COVID-19) vaccine is being offered to people aged 12 and over who had a severely weakened immune system when […]

Dear MDS patients, At the end of February we sent out a postal letter to all patients without internet access. The postal letter included the latest Covid instructions. We include […]

Sajid Javid announced today (03/03/22) that Lateral Flow Tests and PCR tests will remain free of charge for vulnerable patients after 1st April 2022. All blood cancer charities are now […]

Rare Disease Day is the globally-coordinated movement on rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.

Getting your fourth vaccine Some patients categorised as CEV (clinically extremely vulnerable) were sent appointment letters for a fourth vaccine in December, but when our patient representative for Scotland (Maureen) […]

Today – 4th February 2022 is World Cancer Day Browse the interesting programme: https://www.worldcancerday.org/live#programme This year the MDS community is marking the day in an effort to ensure Myelodysplastic Syndromes […]

Covid-19 treatments for some severely immune-compromised patients are now available. The Department of Health and Social Care (DHSC) has issued a ‘Rapid Policy Statement’ regarding ‘Neutralising monoclonal antibodies or antivirals for […]

Date: 21 December 2021 Overview On 12 December the Prime Minister announced a rapid expansion of the booster programme to seek to mitigate the swiftly-growing wave of Omicron-variant Covid-19 cases. […]

The first 2 patients with MDS have been recruited in this exciting new trial for lower-risk MDS. If you don’t yet know about this trial, please check the articles we […]

Research FOR Patients -For an informed and empowered opinion- Have you made your clinical paper accessible yet? This report is written by Chris Dugmore and Claudia Richards who attended the […]