Stem Cell Transplantation: A recorded Zoom session with MDS UK patients and specialists from King’s College Hospital.
1 Sep. 2022
On August 25th 2022, Dr Victoria Potter, Consultant Haematologist & Michelle Kenyon, Clinical Nurse Specialist, from King’s College Hospital, led a session on stem cell transplantation to a large group of MDS UK patients.
Below is a recording of this fantastically valuable session chaired by Chris Dugmore, Essex Group Coordinator, Volunteer & Volunteer Coordinator with MDS UK.
The session starts with an overview of the issues involved in stem cell transplantation followed by a Q&A between specialists and patients. The recording is approximately 1hr 50m and has invaluable information and support for those considering a transplant.
What patients said about the meeting
"I just wanted to say how good the 'Stem Cell Transplant' zoom meeting was today. Excellent facilitation by Chris Dugmore and the medical staff from Kings were really good, explaining things very easily and clearly. This was a much needed topic and personally I think it should be a topic that is covered on a regular basis as there is definitely an audience for it."
"Re the 'Stem Cell Transplant' meeting, I just wanted to thank you for organising such a brilliant meeting and for chairing it so efficiently."
"Getting in touch with the MDS Patient Support Group is proving to be one of the most reassuring (and helpful) things we have done so far since my Dad was diagnosed."
Specialist speakers from King's College Hospital
Dr Victoria Potter is the Consultant Haematologist and Transplant Programme Director at King’s College Hospital. She has been at King’s College Hospital since 2010 and estimates she has over-seen over 1000 stem cell transplants in that time. King’s is one of the 3 largest transplant centres in the UK.
Michelle Kenyon has been a Clinical Nurse Specialist at King's College Hospital for almost 25 years. She also runs a 'Long Term Effects' clinic for people who’ve had a stem cell transplant. Michelle is the co-author of two books on stem cell transplants.
Stem Cell Transplantation: Patient Information books
Michelle Kenyon co-authored two patient information books on stem cell transplantation. The first book, 'Seven Steps', is the most widely used stem cell transplant patient information booklet in the UK.
The second book, 'The Seven Steps: The Next Steps'. was produced in direct response to feedback Michelle received from her patients at King’s, who would often tell her that they needed more information about what to expect after a transplant.
To access a .pdf of 'The Seven Steps: The Next Steps' click the link below. https://www.anthonynolan.org/sites/default/files/2021-08/1981PA_Next7Steps2021_DIGITAL.pdf
