MDS World Awareness Day 2024

24 Oct. 2024
MDS Patient Support

Thank you for joining us and supporting our campaign!

Every October 25th, we come together with the MDS Alliance to raise awareness about MDS, and it’s your enthusiasm and support that help bring our campaign to life.

A huge thank you to everyone who participated—whether by wearing red, completing the MDS Alliance Global Survey, or generously donating to the MDS UK Patient Support Group. Your efforts are truly appreciated and make a real difference in improving the lives of those affected by MDS worldwide.

Why raise awareness?

Rare diseases like MDS often get misdiagnosed, forgotten or ignored. By raising awareness and sharing information, the hope is to

  • enable early detection and treatment of MDS by making people aware of the signs and symptoms. As with all cancers, fast action enables better treatment

  • foster understanding among the public about the challenges MDS patients face

  • help people to have more informed conversations with their healthcare professionals enabling access to specialist care when needed

Going Red for MDS: Thank you for making a difference!

There's still time to make a difference—take the 2024 MDS Global Survey!

 

The MDS Alliance is conducting their 2024 Global MDS Survey, and they want to hear from you. Whether you’re a patient or caregiver, your input is invaluable.  Your feedback will help highlight common challenges, unmet needs, and regional differences in MDS care, enabling the MDS Alliance to advocate for better healthcare policies, improved access to treatments, and increased support for those living with MDS. Your voice will make a difference—thank you in advance for sharing your experiences.

Donate to MDS UK Patient Support Group

 

MDS Patient Support
MDS UK are the only UK-based support group dedicated solely to informing, supporting, and empowering people affected by MDS & CMML. We raise awareness of MDS & CMML, offer support groups, a support phone-line and information to patients and families. We also campaign to improve quality of life and make treatments available to those affected by Myelodysplastic Syndromes.  As a small charity, we rely on the kindness of supporters like you to continue our vital work. We keep our running costs low, ensuring every penny directly benefits those affected by MDS and CMML, funds life-changing research, and improves the quality of life for patients and their families.  Every donation makes a big difference, thank you.

Send us your ideas for next year's MDS World Awareness day!

It’s never too early to put your thinking caps on for next year’s MDS World Awareness Day. If you have any ideas on how we can make an even bigger impact in raising awareness, we’d love to hear them. Feel free to email us at info@mdspatientsupport.org.uk to share your thoughts.

Thank you 

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