Read the article ‘Living with cancer, fighting the clichés’ by Sally Gritten , published on Monday 10th September 2012.

The Westminster Government will be changing the way new medicines are priced across the UK. Help make sure this new approach reflects the needs of people affected by cancer by filling in a short online survey.

In 2013 the annual meeting of the European Bone Marrow Transplant Society (EBMT) will be held in London. Fill in the online Patient Questionnaire to have your say on the topics covered and to show interest in attendance.

From Tuesday 25th September 2012 to Friday 5th October 2012, King’s College Hospital in London are showcasing photographs by the award-winning photographer Ed Kashi. The ‘Life Beyond Limits’ exhibition offers an inspirational glimpse into the lives of six individuals across the world who are living with myelodysplastic syndromes (MDS).

Maverick TV are looking for paticipants for a number of short films about cancer to run during a fund-raiser on Channel 4 in October. Please read more if you are interested in applying to take part.

In May 2012, we invited MDS patients and carers to take part in a Department of Health web-based survey on what matters to patients and their carers about being in hospital. The preliminary results of the survey, ‘Hospital Inspections – Led by Patients’, have now been released.

Please inform your doctor of an education day in London on 19/11/12 held by the UK MDS Forum.

This article talks about various issues around rare conditions and the orphan drugs that are needed to treat those conditions. It deals with the difficulty in diagnosing rare conditions, the […]