Bone Marrow donations will be discussed tomorrow in parliament – 06/03/13 – at about 12.30pm – after Prime Minister Question Time. This is tied to an Early Day Motion tabled […]

We have been alerted about an issue in Dublin – regarding an MDS patient employed by Dublin Airport Authority. We cannot comment – as this is going through the tribunals […]

Rare Disease Day – 28th February Check what events took place all over the world: http://www.rarediseaseday.org/article/about-rare-disease-day Check also the video done for the occasion:   Lord Avebury – who often […]

The next MDS Foundation Newsletter is also available – should you have missed out on it recently. Please use link below: fall2012newsletter-102712

Our third Newsletter is now available online – with a update on clinical and research news from the ASH Congress (American Society of Haematology), from EHA (European Haematology Association), an […]

The government has set up a Commons Select Committee to inquire into clinical trials and disclosure of data. To date, numerous trials are running, but not all results are always […]

Early research results about a better understanding of the way azacitidine works. Specifically about why azacitidine does not not in some people. This is encouraging, but very early research – […]

Download our second newsletter containing updates, news from the American Society of Hematology 2011, introduction of our new patrons, fundraising stories, patient inputs and more.

As part of their coverage for Rare Disease Day, BBC Online has included the story of an MDS patient – Patricia Ellis – who has attended our London Forum in […]