MDS Latest News
The Westminster Government will be changing the way new medicines are priced across the UK. Help make sure this new approach reflects the needs of people affected by cancer by filling in a short online survey.
Read full storyIn 2013 the annual meeting of the European Bone Marrow Transplant Society (EBMT) will be held in London. Fill in the online Patient Questionnaire to have your say on the topics covered and to show interest in attendance.
Read full storyFrom Tuesday 25th September 2012 to Friday 5th October 2012, King’s College Hospital in London are showcasing photographs by the award-winning photographer Ed Kashi. The ‘Life Beyond Limits’ exhibition offers an inspirational glimpse into the lives of six individuals across the world who are living with myelodysplastic syndromes (MDS).
Read full storyRead the full article by Dr David Bowen on the MDS Beacon, discussing the International Prognostic Scoring System and attempting to decode the revised edition.
Read full storyThe Foundation for Social Improvement (FSI) are offering you the chance to win a brand new car and support MDS UK at the same time. For your chance to win, safely buy an electronic raffle ticket for just £2.00 each. For every £2.00 raffle ticket sold, MDS UK will receive £1.84.
Read full storyMaverick TV are looking for paticipants for a number of short films about cancer to run during a fund-raiser on Channel 4 in October. Please read more if you are interested in applying to take part.
Read full storyIn May 2012, we invited MDS patients and carers to take part in a Department of Health web-based survey on what matters to patients and their carers about being in hospital. The preliminary results of the survey, ‘Hospital Inspections – Led by Patients’, have now been released.
Read full storyPlease inform your doctor of an education day in London on 19/11/12 held by the UK MDS Forum.
Read full storyThis article talks about various issues around rare conditions and the orphan drugs that are needed to treat those conditions. It deals with the difficulty in diagnosing rare conditions, the costs of drug development, the role of pharma companies, the investment needed, the cost-effectiveness process applied and what European governments and other stake-holders need to […]
Read full storyClinical journal Oncology Practice regarding the importance of Quality of Life (QOL) as perceived by patients.
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