MDS Latest News
If you are using a Hickman line – we have received the following tip and new device from a patient, who invented a special holder that makes the central line a little more comfortable.
Read full storySome Olympic procession fever and fun – for your enjoyment.
Read full storyPatient participants needed for a survey regarding issues of access to medicines.
This survey is being conducted by a researcher at LSE – London School of Economics – as part of a study looking at problems patients have in accessing their medicines.
Read full storyTimes news article on rare diseases featuring MDS UK, published on 10/07/12
Read full storyRead the full article on Sapacitabine trials on The MDS Beacon
Read full storyWatch a European Journal of Cancer (EJC) video discussing: How to address the key challenges in medical oncology?
Read full storyRare Diseases UK have been contacted by Julie Cook, a freelance journalist for women’s magazines such as Bella and Women’s Own, who has an interest in rare diseases. She writes for the health pages of these magazines and is interested in doing an article on a family affected by a rare disease that they would […]
Read full storyMDS Day conference for MDS physicians, scientists and clinical nurse specialists – 21/11/2011
MDS patients – please inform your local clinical staff of this event.
NICE, the National Institute for Health and Clinical Excellence is running a survey about their work amongst the general public – and health professionals. Please do take part – even if you are not familiar with all aspects of their activities.
Read full storyInvitation to share your MDS story with this new project: Life beyond Limits.
Please check the website – we hope you can help raise awareness of MDS via this work.