In this presentation, Dr Luke Carter-Brzezinski, Haematology Consultant at the Haematology Cancer Diagnostic Partnership in Manchester, shares key insights from the latest Haem.io patient survey and introduces an exciting new patient portal—an innovative digital tool designed to transform how patients engage with their care and support them throughout their long-term treatment journey.

Discover how Vitamin B5 research could boost red blood cell production and improve outcomes for MDS patients. Support MDS UK’s vital work.

Thanks to generous fundraising from Buckby Castle Masonic Lodge and The Stragglers, a new MDS Quality of Life study is now underway. Find out more

Clear, trusted guide for MDS patients about stem cell bone marrow transplants, presented by Patricia Cardosa, Clinical Nurse Specialist at King’s College Hospital. Covers before, during and after transplant care.

Now recruiting in the UK: PyramIDH trial for untreated IDH1-mutant MDS patients comparing Ivosidenib vs Azacitidine. See if you’re eligible.

In this presentation, ‘Coping with an MDS diagnosis’, lead Psychotherapist Surabhi Chaturvedi from the haematology department at King’s College Hospital, London, discusses the emotional challenges of an MDS diagnosis and offers […]

A new NHS-supported app, ‘My Transfusion’, is now available to help blood transfusion patients understand their treatment, options, safety checks and aftercare.

We’re pleased to share this presentation Understanding Blood Transfusions from Nurse Kelly Nwankiti, Lead Nurse for Patient Blood Management at King’s College Hospital. Kelly explains the key details of blood […]

his MDS World Awareness Day, we’re highlighting #BruisingBleedingFatigue — the key symptoms of MDS. Early recognition and a simple blood test can lead to faster diagnosis, support, and treatment.

Support line and email response over Christmas Support line will close: 5pm, Tuesday 23 December Reopens: Monday 5 January 2026 Email: During this time, we will respond to urgent emails […]