16th October 2022 marks an important date in MDS UK calendar as the annual “Cabbage Patch 10” – one of our biggest fundraising events – returns! MDS UK has a number of free places – contact Ashleigh Venables at fundraising@mdspatientsupport.org.uk
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However it won’t be quite the same as pre-covid times. We asked the MDS experts to explain what patients may expect in the weeks and months to come. And – […]
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Anthony Nolan’s Trust urged the Government to ensure every patient could access the treatment they needed and on the 24 February 2017 NHS England reinstated funding to 2nd stem cell […]
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The Haematology Institute Nurses and Allied health Professionals Group is hosting a one day event on 10th July 2017 at the Robens Suite, 29th floor, Tower Wing, Guy’s Hospital London […]
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MDS World Awareness Day – Preparations for 2016 October 25th is being marked by a global community of patients, patient groups and professionals supporting people living with MDS as MDS […]
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Slides to download: What is myelodysplasia?, Symptoms, Diagnosis and prognosis, Myelodysplasia therapy, Supportive care, Non-intensive therapy, Bone marrow transplant Dr Helen Enright, Dublin, Ireland Patient Forum 17/06/2011
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Until now, bone marrow sampling has been the primary technique for routine follow-up checks on MDS patients after initial diagnosis. The bone marrow is the heart of the disease and […]
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2015 MDS World Awareness Day: Video Stories 25/10/2015 Some of our true champions for MDS awareness have shared their stories with us. Watch their video clips and share them in […]
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London School of Economics Survey about how quality of life is measured and reported in Health Technology Assessments (HTA) 28/05/15 Another survey for patients and carers to take part. HTA […]
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Tigress Productions looking for volunteers for programme on rare diseases – 28/05/15 We have been contacted by a TV production company – Tigress Productions – who are looking for patients […]
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