16th October 2022 marks an important date in MDS UK calendar as the annual “Cabbage Patch 10” – one of our biggest fundraising events – returns! MDS UK has a number of free places – contact Ashleigh Venables at fundraising@mdspatientsupport.org.uk
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However it won’t be quite the same as pre-covid times. We asked the MDS experts to explain what patients may expect in the weeks and months to come. And – to remind all patients that despite covid, isolation, shielding and perhaps not seeing your usual clinical teams, it is still VERY important to communicate any […]
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Anthony Nolan’s Trust urged the Government to ensure every patient could access the treatment they needed and on the 24 February 2017 NHS England reinstated funding to 2nd stem cell transplants. Stem cell transplants help cancer patients replace damaged blood cells Procedure costs the National Health Service between £50,000 and £120,000 In 2016 the NHS […]
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The Haematology Institute Nurses and Allied health Professionals Group is hosting a one day event on 10th July 2017 at the Robens Suite, 29th floor, Tower Wing, Guy’s Hospital London SE1 9RT. The conference will celebrate the current contribution of nursing to the care of patients experiencing haematology disorders. With presentations from notable speakers and leaders […]
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MDS World Awareness Day – Preparations for 2016 October 25th is being marked by a global community of patients, patient groups and professionals supporting people living with MDS as MDS World Awareness Day. We are preparing for MDS Day 2016, Tuesday 25th of October, to make it an exciting day for patients and their families […]
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Slides to download: What is myelodysplasia?, Symptoms, Diagnosis and prognosis, Myelodysplasia therapy, Supportive care, Non-intensive therapy, Bone marrow transplant Dr Helen Enright, Dublin, Ireland Patient Forum 17/06/2011
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Research FOR PatientsFor an informed and empowered opinionand an improved consultationHave you made your clinical paper accessible yet? Until now, bone marrow sampling has been the primary technique for routine follow-up checks on MDS patients after initial diagnosis. The bone marrow is the heart of the disease and reveals important clues, for example, about whether […]
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2015 MDS World Awareness Day: Video Stories 25/10/2015 Some of our true champions for MDS awareness have shared their stories with us. Watch their video clips and share them in support of MDS World Awareness Day 2015! Emma Paine: What happens when you need a second transplant? Emma is an MDS patient. She had a […]
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London School of Economics Survey about how quality of life is measured and reported in Health Technology Assessments (HTA) 28/05/15 Another survey for patients and carers to take part. HTA organisations, such as for example NICE (National Institute for Clinical Health and Excellence) mostly use a questionnaire called the EQ-5D to measure the impact of […]
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Tigress Productions looking for volunteers for programme on rare diseases – 28/05/15 We have been contacted by a TV production company – Tigress Productions – who are looking for patients with a rare disorder – and had problems getting diagnosed. MDS would be ideally suited for this, as many patients often take a while to […]
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