Tag: MDS

The Cabbage Patch 10 returns – 16th October 2022

16th October 2022 marks an important date in MDS UK calendar as the annual “Cabbage Patch 10” – one of our biggest fundraising events – returns! MDS UK has a number of free places – contact Ashleigh Venables at fundraising@mdspatientsupport.org.uk

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Realising the potential of haematology nurses and allied health professionals

The Haematology Institute Nurses and Allied health Professionals Group is hosting a one day event on 10th July 2017 at the Robens Suite, 29th floor, Tower Wing, Guy’s Hospital London SE1 9RT. The conference will celebrate the current contribution of nursing to the care of patients experiencing haematology disorders. With presentations from notable speakers and leaders […]

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MDS Awareness Day 2016 – Tuesday 25th October

MDS World Awareness Day – Preparations for 2016 October 25th is being marked by a global community of patients, patient groups and professionals supporting people living with MDS as MDS World Awareness Day. We are preparing for MDS Day 2016, Tuesday 25th of October, to make it an exciting day for patients and their families […]

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MDS World Awareness Day – 25th of October 2015

2015 MDS World Awareness Day: Video Stories 25/10/2015 Some of our true champions for MDS awareness have shared their stories with us. Watch their video clips and share them in support of MDS World Awareness Day 2015! Emma Paine: What happens when you need a second transplant? Emma is an MDS patient.  She had a […]

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Survey in Europe – Measuring Quality of Life

London School of Economics Survey about how quality of life is measured and reported in Health Technology Assessments (HTA) 28/05/15 Another survey for patients and carers to take part. HTA organisations, such as for example NICE (National Institute for Clinical Health and Excellence) mostly use a questionnaire called the EQ-5D to measure the impact of […]

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TV programme on rare diseases

Tigress Productions looking for volunteers for programme on rare diseases – 28/05/15 We have been contacted by a TV production company – Tigress Productions – who are looking for patients with a rare disorder – and had problems getting diagnosed. MDS would be ideally suited for this, as many patients often take a while to […]

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