Petition from a UK nurse

Petition from a UK nurse – Tracey Nelson – for good individualised patient care within the NHS. Please consider signing it. See also her entry on our Facebook page.

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Introducing our new patrons

We are delighted to introduce two eminent patrons to the MDS UK Patient Support Group: Professor Ghulam Mufti – Professor of Haematology at King’s College Hospital in London, and Lord Tariq Ahmad – The Lord Ahmad of Wimbledon.

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Are you Fit to Spit ?

DEC 2013 An update on the Sharon Berger #Spit4Mum Campaign, led by her children Jonni and Caz, to increase stem cell donations amongst the Jewish community (Dec 2013). FIT TO SPIT clip – Beatbox style! All you young fit men out there – we still need your help. Here is why: Our fantastic treasurer – […]

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DNA mapping for cancer

DNA mapping for cancer patients A new project is to be launched in the UK to sequence the DNA of cancer patients and those with rare diseases. In MDS – this will be a further improvement to better understand why certain patients respond better – or worse – to certain treatments. BBC News article extract: […]

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Survey for patients – Jan 2012

This is a very short online survey initiated by the Rarer Cancers Foundation – requesting the views and opinions of people (patients, carers, friends) affected by advanced cancer. Please help by answering these few questions.

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ASH 2011 Conference Highlights

Dr Austin Kulasekararaj, Haematologist Consultant at King’s College Hospital London, summarises the highlights of The American Society of Haematology (ASH) Conference 2011.

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MDS on BBC1 – Hunted

Update: Response from the writer! (see below) The BBC1 drama Hunted has featured MDS in one of their story lines – in the most recent episode Polyhedrus. One of the side characters mentions she suffers from frequent nose bleeds and bruising – and explains it is due to a platelet disorder called MDS. This is […]

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