MDS UK Support Group helps anyone affected by MDS or CMML

Providing reliable information, support and a chance to connect with leading UK specialists in MDS & CMML at online Support meetings 

Are you newly-diagnosed with MDS or CMML?

Try our 'Quick Links Guide' to go straight to the pages, articles and videos on our website that we believe are the most useful in those early days following diagnosis.

Questions to ask your healthcare team 

It's easy to get overwhelmed by some of the complex information given at your appointments. Use this pre-prepared list of questions to help you get the answers you need.

New MDS Guide (2024)

downloadable comprehensive MDS Guide for patients, families and care-givers which describes the various types of MDS, diagnosis, treatment and more. Co-written by the MDS UK Patient Support Group and Leukaemia Care, this guide is a brand new edition (April 2024).

If you'd prefer a hard copy, email us at admin1@mdspatientsupport.org.uk and we'll be happy to post one out to you.

Patient Stories

Lynne Elliot

Lynne's story - 23 years post MDS diagnosis and her life has turned out much better than expected. In 2000 I had been breathless...
Read More
Lynne Elliot

Upcoming Events

  1. Online support meeting (with speaker Dr Matt Poynton)

    May 7 @ 10:30 am - 12:30 pm
  2. Online support meeting

    May 30 @ 10:30 am - 12:30 pm
  3. Join #TeamMDS in the Great North Run 2024 – Register for free today!

    September 8 @ 8:00 am - 5:00 pm
MDS UK Patient Support Group logo

MDS UK Patient Support Group is a registered member of the ICO  (Registration no: ZB332063)

MDS UK Patient Support Group is a founding member of the MDS Alliance, the international umbrella group for all national support groups. The MDS Alliance is dedicated to sharing and improving information and awareness between patients, globally.

MDS UK Patient Support Group is a registered charity (Registered charity No: 1145214)

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