We campaign on behalf of those affected by MDS
In collaboration with professional advisers covering healthcare, the media and Government we campaign to ensure the best possible resources are available to all people affected by MDS, wherever they are in the UK and whatever their circumstances.
MDS UK Latest Campaigns
MDS UK has been involved in providing input to the National Institute for Health and Clinical Excellence (NICE) and has representatives who belong to Patients Involved in NICE (PIN). We also campaign in collaboration with other organisations such as Cancer52, representing the less common cancers, and the Blood Cancer Alliance.
We have regular dialogue with MPs and peers, particularly those with appointments in health or a strong interest in healthcare matters, to keep them informed about MDS and its treatment.
MP Rarer Cancers Toolkit
Your constituent, their treatment and how you can help. Updated July 2012
The Parliamentary Lobby Day on 26th October 2010 was extremely successful. Numerous patients were able to speak to their MP’s personally and discuss the issues surrounding MDS, access to treatment, NICE time-lines and the Cancer Drug Fund.
MDS UK also released the results of a survey that found that 2/3 of MPs didn't know what NICE HTA or a QALY was.
Watch the discussion on Parliamentary TV or read the main points here