Help us Raise Funds!

Fundraise for us

We are able to run the MDS UK Patient Support Group thanks to donations from individuals and businesses, fundraising events and grants from pharmaceutical companies – as well as memorial donations from families who sadly lost a loved one to MDS.

MDS UK does not currently receive any other types of grants or assistance from Government or Trusts.

If you'd like to fundraise for us, please contact our Fundraising Team

Have a look at our "20 Covid Friendly Fundraising Ideas"

Knit for MDS UK!

Cycle solo for MDS UK

Organize a Charity Bake off

We aim to ensure that all patients and families receive the attention and information they need during those particularly difficult times – straight after diagnosis, at treatment changes, time of transplant or progression of the condition.

Thanks to the donations and legacies received to date, MDS UK will be in a position to fund aspects of research in MDS – in addition to the essential support services we have been providing to patients and families since 2009.

As part of our recently revised funding strategy, MDS UK commissions and participates in research projects relating to MDS, as well as initiates, supports and participates in research which is likely to assist in the understanding and treatment of MDS.

Campaigns and advocacy are of particular importance when it comes to ensuring that a drug is recommended for use in the NHS (the cost effectiveness process). Without the patient voice and support group contributions, some drugs would either not be recommended, or take a lot longer to be recommended.

Thank you for all your efforts, support, encouragement and confidence in all we do, for and with patients and their families.

We have some wonderful people, patients, families and companies who raise funds in many different, amazing, simple or courageous ways.

Future fundraising events

Companies and corporate funding donors

MDS UK are very proud to operate a charity that is happily diverse in terms of age, gender identity, race, sexual orientation, physical or mental ability, ethnicity and citizenship.

We believe that having an environment where everyone, from any background, can do their best is the absolute right thing to do.

We want all of our employees, partners, volunteers, remote workers, committee members, fundraisers and patients to feel valued, appreciated, and free to be who they are when dealing with MDS UK.

Other Ways to Give

Memorial Donations and Legacies

We also have many families who sadly lost a loved one to MDS and kindly contribute to a memorial fund in their name.
If you wish to help in this way, or wish to set up a legacy, please get in touch with us on You can also have a look at our Legacy Giving Brochure for more information.

Donate via JustGiving

JustGiving allows you to donate the sum of your choice safely and add Gift Aid automatically.

Shop and Give without even noticing it: Give as you Live

If you use the internet to buy goods, hotels, travel or services online, please consider using this scheme, which allows you to pick your favourite cause and raise funds at no cost to you!

MDS UK is registered on Give as you Live. All you need to do is to register and then shop online as you would normally do.

Please forward to friends and family. Thank you for your on-going support.

We are utterly grateful to all of you who are helping the cause of MDS

We need funds to offer patients these services free of charge:

National and local meetings for patients and families

A 1 day meeting costs about £5,000 for 100 attendees

Patient Meetings

2 newsletters per year, leaflets & information material

We send out about 15-20 information packs a month

Information Material

A telephone helpline, manned 5 days a week

We get about 10 calls a week from patients and family members

Contact Us

Our website and online discussion forum

Visited by more than 32,000 people last year

Visit the Forum

2 Facebook pages

One public, liked by 2,150 people, and one confidential, with 686 members

Visit our Facebook page

A national survey project

Assessing the needs of UK MDS patients amongst 450 MDS patients

Complete our survey

MDS UK is a young organisation, formally set-up in 2009

We want to sustain this level of assistance to patients in the future and also make sure we achieve continuous financial stability for the group.
Our aim in the long-term is to increase our fundraising for Quality of Life research projects, Clinical Nurse Specialist posts or projects, Counselor posts. We are also connected to the UK MDS Forum, led by Prof Mufti and aim to assist this group with funding as soon as we are able.

We need funds to cover the running costs of the organisation, namely, 2 employees, funding of travel costs to conferences and meetings, where we represent the needs of UK MDS patients, and general running costs of an office (computers, printers, stationary, telephone, internet). Fortunately, our office space is free of charge. We are grateful to our Patron Prof Mufti at KCH to let us have use of those offices for MDS UK work.

We do keep costs as low as possible. We have 10 further members on our committee – all working on a voluntary basis – most of them patients themselves. We also have one volunteer assisting with admin work 1 day/week. But we desperately need funds now and in the future to keep going in the long-term.

Raising funds = Raising awareness of MDS
Please help by talking about MDS and MDS UK amongst friends, families, colleagues - every type of contribution helps.
Thank you

Free donations by shopping