Newly-diagnosed with MDS/CMML? See our Quick Links guide

We recently held a meeting for newly-diagnosed patients and/or those new to MDS UK, for which we produced a ‘quick links’ list.
Our website is packed full of useful information and resources, but we appreciate that, as someone new to MDS or CMML, there is a lot to take in.


Photo by Kampus Production


The links below take you straight to the pages, articles and videos on our website that we believe are the most useful in those early days following diagnosis.
(If you'd prefer, you can download the list as a pdf document from here >  Quick Links Guide for the newly-diagnosed.pdf)


MDS : general information


CMML : general information


Video presentations by guest speakers


Useful info when seeing a specialist


Where to find peer-to-peer support

What people say about the MDS Patient Support Group

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"Getting in touch with the MDS Patient Support Group is proving to be one of the most reassuring (and helpful) things we have done so far since my Dad was diagnosed."


“I’m really glad I have connected with the MDS Support Group and am so thankful for all you do.”

"I have been to only 2 patient meetings so far and found them both very helpful. Meeting other MDS patients and sharing experiences with them has made a great difference to the way in which I deal with my own MDS and put my own current medical position in perspective."             Read more testimonials

Become a Member of MDS UK Patient Support group

Membership is free and open to anyone in the UK who's been diagnosed with, or affected by MDS or CMML. On joining, you'll receive the MDS UK Patient Support handbook, our monthly e-newsletter, log-in details for the chat forum and more

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