Those of you who have been told you are eligible for Covid treatments, should you test positive for Covid, should have received a recent NHS notification from Sir Stephen Powis about changes to how this treatment will be obtained; Key points are: This change takes effect from June 27th 2023 From this date, you will no […]

The NHS website has updated information from March 2023 on Covid-19 treatments for those at highest risk. Find out what the key changes are for patients with MDS, CMML, or people who have undergone a stem cell transplant.

The Joint Committee on Vaccination and Immunisation (JCVI) has confirmed its advice for a 2023 spring coronavirus (COVID-19) booster programme offering a vaccine top-up for over-75s, immunosuppressed and residents in care homes for older adults.

The APPG for Vulnerable Groups to Pandemics UK Inquiry has released their report this month (March 2023) into the Forgotten 500k Immunocompromised Patients.

Technically speaking, no MDS or CMML patients should have issues accessing vaccines or anti-COVID19 medication.

If however, you encounter problems, do point any GPs to the document below, which is a new list identifying exactly and precisely who the highest at risk patients are, in terms of COVID-19 infection. MDS, CMML and transplant patients are all listed.

  COVID-19 is not yet over for blood cancer, as you all know. Access to medication and services has been difficult, in the UK, and other countries. The International COVID-19 Blood Cancer Coalition (ICBCC) has updated their website in May – with further supporters for the cause, and a call for action. We urge you […]

A 3rd dose and booster dose (4th dose) of the coronavirus (COVID-19) vaccine is being offered to people aged 12 and over who had a severely weakened immune system when they had their first 2 doses. This includes patients who had or have a blood cancer such as MDS or CMML and patients who had […]

Dear MDS patients, At the end of February we sent out a postal letter to all patients without internet access. The postal letter included the latest Covid instructions. We include these instructions here so that you can read them carefully and follow them to increase your protection. We are aware that not all MDS patients […]

Covid-19 treatments for some severely immune-compromised patients are now available. The Department of Health and Social Care (DHSC) has issued a ‘Rapid Policy Statement’ regarding ‘Neutralising monoclonal antibodies or antivirals for patients with COVID-19’, for both hospitalised and non-hospitalised settings. The eligibility criteria for these drugs was revised on the 24th December. The most important change […]

Date: 21 December 2021 Overview On 12 December the Prime Minister announced a rapid expansion of the booster programme to seek to mitigate the swiftly-growing wave of Omicron-variant Covid-19 cases. The following day, the NHS confirmed in a letter from Amanda Pritchard (chief executive, NHS England) and Stephen Powis (chief executive, NHS Improvement) to the […]