The Make Blood Cancer Visible campaign was set up in Cardiff during the week of 10 – 15 Sept, in Working Street. Take a look at the many photos and reactions of the public to this exhibit – and read all about the campaign on the London launch page BBC Wales evening news
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Anthony Nolan’s Trust urged the Government to ensure every patient could access the treatment they needed and on the 24 February 2017 NHS England reinstated funding to 2nd stem cell transplants. Stem cell transplants help cancer patients replace damaged blood cells Procedure costs the National Health Service between £50,000 and £120,000 In 2016 the NHS […]
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Since NHS England initially announced in December 2016 that it wouldn’t fund second transplants, more than 25,000 people joined our campaign to reverse the decision. Thanks to every single person that signed the petitions, and wrote to their MPs. We all did it together. Thanks to colleagues at Anthony Nolan, all other blood cancer charities, […]
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Update 24 February 2017: NHS England reinstates funding to 2nd stem cell transplants thanks to your support! Read More Here Early in 2016 a MDS patient was denied a potentially life- saving 2nd bone marrow transplant despite showing a good chance of being cured by this 2nd treatment.After 4 months of waiting, spent in and […]
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Research FOR PatientsFor an informed and empowered opinionand an improved consultationHave you made your clinical paper accessible yet? Until now, bone marrow sampling has been the primary technique for routine follow-up checks on MDS patients after initial diagnosis. The bone marrow is the heart of the disease and reveals important clues, for example, about whether […]
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Thanks to the latest improvements in cancer treatment many more cancer patients are now able to live with their condition.As a chronic illness, cancer requires long-term watch, maintenance and treatment and patients and their families need to manage their own care.The iManageCancer project is creating intelligent, fun new ways to allow patients to manage their […]
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The Cancer Drug Fund (CDF) de-listing further drugs Many blood cancer patients are about to face more severe issues of access to treatment, following the announcement that the CDF is de-listing further drugs in order to balance its budget. Twelve of these are blood cancer drugs. None of the cuts affect MDS patients, but the […]
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2015 MDS World Awareness Day: Video Stories 25/10/2015 Some of our true champions for MDS awareness have shared their stories with us. Watch their video clips and share them in support of MDS World Awareness Day 2015! Emma Paine: What happens when you need a second transplant? Emma is an MDS patient. She had a […]
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100 Q&A book on MDS – revised edition We have the latest revised edition of the really helpful 100 Questions & Answers book on MDS available from our office – free of charge to patients. Some of you may have been given the initial 2008 edition, which we distributed a few years ago – and […]
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London School of Economics Survey about how quality of life is measured and reported in Health Technology Assessments (HTA) 28/05/15 Another survey for patients and carers to take part. HTA organisations, such as for example NICE (National Institute for Clinical Health and Excellence) mostly use a questionnaire called the EQ-5D to measure the impact of […]
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