Silence Therapeutics

Thomas said to us:

“It was a company-wide thing that we decided to do something for charity, and it was a no-brainer that I suggested MDS UK for my team.”

“The decision was unanimous as they were so moved by my Dad’s story, who is now in remission since receiving a stem cell transplant following his progression to leukaemia."

“The charity has been amazing. The research they are currently doing is great and the meetings are a great source of support for Dad."

“The first thing I did when I knew we were doing this was ask him about MDS UK as I know it’s been a tough time for charities. We are really happy that we’ve helped so much.”

MDS UK would like to say a huge thank you to Thomas and his team at MyCSP for their selfless efforts in helping us through these tough times!
We would also like to wish Thomas’ father continued improvement in his MDS journey!

SMART Qualifications Team are a training provider for the fitness industry so they wanted to make their fundraising something about keeping on the move so they are virtually going to go around the world walking, running, cycling, swimming, stepping, boxing, whatever our activity of choice!

Their learners, participants and staff are going to record their steps and see if we can travel the 24,901 miles (40,075 kms) around the world, that's nearly 50 million steps!

They will also be doing a variety of activities over the year to raise money including some physical challenges including double ups, a plank challenge, press-ups in a minute etc. as well as walking around the world.

They are now a quarter of the way in to their virtual walk around the world challenge and most participants are on schedule to walk their chosen country and more besides.

Smart Qualifications are not only fundraising for MDS UK Patient Support Group, but also doing an incredible job at raising awareness of the disease:

For us, as a small charity, it is a dream to get such a generous institution to fundraise for us. We are extremely grateful to Smart Qualifications for thinking of us.

All the money raised will go to ensure that all patients and families receive the attention and information they need during those particularly difficult times – straight after diagnosis, at treatment changes, time of transplant or progression of the condition.

Amadeus, the leading provider of IT solutions to the global tourism and travel industry, are not new to giving, having donated an amazing £3,000 for MacMillan last year.

This year, they are not only fundraising for MDS UK Patient Support Group, but also doing an incredible job at raising awareness of the disease:

We are raising money for our colleague who is suffering from a cancer condition called Myelodysplastic Syndrome known as MDS, very few people are diagnosed in the UK from this condition and infact in the USA just 63 per year.

A person with MDS will suffer from chronic tiredness and weakness due to the low levels of haemoglobin in the red blood cells, which carries oxygen to the body.
This is debilitating in itself and often requires regular blood transfusions. Transfusions are time consuming and restrictive.

In MDS, platelet numbers, which prevent bleeding and bruising, can often be very low. This can result in spontaneous bleeding and bruising.
If an injury is sustained blood loss may be excessive. Clearly these factors result in many constraints and difficulties. Platelet transfusions may be required on a regular basis.

When white cells numbers become very low (as they often do in MDS) the body is unable to fight off infection normally. This results in a greater than usual incidence of infections which take longer than usual to clear and might require hospitalisation. White cells cannot be given by transfusion.

We are collecting money for the charity that is looking into new research to better manage the situation and look for extending quality of life. Our colleague has a young family and lives in Crawley in West Sussex and has been unable to work for over two years now.

For us, as a small charity, it is a dream to get such a generous fundraiser. We are extremely grateful to Amadeus for thinking of us.

Suzanne Green, director of Marketing and Partner Propositions, communicated the great news to us:

We raised a substantial amount of money at a 30th Birthday Charity event attended by 320 colleagues and customers in London through sponsorship, a silent auction, raffle and personal donations on 27th April and it was by all accounts a great night had by all.

So I am delighted on behalf of Mortgage Brain to confirm that we will be making an approximate donation of £8,000 to the MDS UK Patient Support Group. The charity was nominated by our Mortgage Brain colleague, Kay Goodwin.

All the charities nominated are all actively supported through fundraising or volunteering by one or more of my colleagues. The donation will be a mixture of corporate and personal donations.

We are utterly grateful to Mortgage Brain and to Kay Goodwin for thinking of us. What a superb fundraiser event! Our CONGRATULATIONS for these 30 years of success for the company!

For us, as a small charity, it is a dream to get such a generous fundraiser.

THANKS A MILLION TO MORTGAGE BRAIN EMPLOYEES FOR THEIR GENEROSITY!!