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Watch the videos from the UK MDS Forum Education Day 2016

The following videos come from the annual UK MDS Forum Education Day 2016, which took place in London on 11th November 2016.

The day is targeted at all haematologists in the UK and Ireland who deal with MDS patients. Its aim is to provide information and updates on the most advanced scientific and clinical research in MDS. Please have a look at the agenda here.

We are now able to make the videos available online. Although these were initially intended for health professionals, patients and their families are also invited to watch. Our aim is to make this valuable information more widely available, not only to clinicians and nurses but also to patients, in order to educate and empower them, as well as explaining the fantastic research that goes on in MDS.

Immunophenotyping in MDS - Prof. Arjan Van de Loosdrecht

Case history: Immunophenotyping an MDS patient - Dr. Robin Ireland

King's Myeloid Gene Panel Development - Dr. Steve Best

CHIP / ICUS / CCUS What Does It Mean in the Clinical Practice? - Dr. Catherine Cargo

MDS Initiating Cells and Clonal Evolution - Prof. Dominique-Bonnet

Integrated Functional and Genomic Analysis of Leukaemia Stem Cells in AML - Dr. Lynn Quek

Please feel free to use and share these clips, but please credit MDS UK Patient Support Group, as well as UK MDS Forum.

TV programme on rare diseases

TigressProdblackTigress Productions looking for volunteers for programme on rare diseases – 28/05/15

We have been contacted by a TV production company – Tigress Productions – who are looking for patients with a rare disorder – and had problems getting diagnosed.
MDS would be ideally suited for this, as many patients often take a while to be diagnosed, despite odd blood results or symptoms.
If you are interested in taking part, and would be willing to talk about your diagnosis experience on camera, please get in touch with the production team.
They are looking for up to 3 people for this documentary.

Here are further details about the programme:

Tigress Productions has just started to produce a new six part series for a terrestrial broadcaster with the working title ‘Medical Mysteries’.  Each programme will follow the personal journeys of people who have suffered from or are in the process of trying to diagnose/treat a medical mystery.

The aim of the series is to raise awareness about lesser known ailments, showcase revolutionary new treatments, and also show our audience in detail how the diagnosis process works – often patients are left wondering why their GP has taken a certain course of action; rare conditions offer us the opportunity to follow a doctor thought process from beginning to end.

The mystery doesn’t have to be that mysterious – it just has to pose a specialist with a number of options in terms of finding a diagnosis.  A key aspect of this programme will be the detective story – how a consultant or GP have interpreted the symptoms, the tests that they have chosen and why.

Tigress Productions would like to speak to people with medical mystery experiences for a new TV documentary series.

Please call 0117 933 5654/ 0117 933 5609

or email  for more information

A bit about us; Tigress Productions, part of the Endemol Group, are producers of inserts of The One Show (BBC1) and other shows as Winter Viruses and How To Beat Them (BBC2) and Africa 2013: Countdown to the Rains (BBC2).

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