New service for patients: online video consultations with an MDS specialist

Are you unable to travel? Would you like to have a second opinion? One to one video consultations online

This is a brand new NHS service for MDS patients, for online clinical consultations with one of the main MDS specialists in the UK, Professor David Bowen, from the MDS Centre of Excellence in Leeds.

Video consultations are available on Wednesdays but with some flexibility.

Make an appointment today!

Send an email to Prof Bowen’s secretary jayne.croft@nhs.net

Who is it for?

  • Any MDS patients who would like a specialist MDS consultation.
  • This service is very similar to the standard referral request for an “Additional opinion” at an MDS Centre of Excellence.

Prof Bowen: "Patients should have the opportunity to see a true expert in whatever disease they have"

How can you access this?

If interested, just like any conventional referral request, speak to your GP or local haematologist, explaining you would like to have an additional opinion from an MDS expert.

MDS is a rarer disease, and often requires an MDS expert to evaluate the exact sub-type of MDS, or explore and discuss additional treatment options, including clinical trials.

Your haematologist, or GP, needs to refer via the traditional referral system, to Professor David Bowen, at Leeds Teaching Hospital.

An appointment will be arranged after receipt of a formal referral from either the GP or local Haematologist, which should contain as much detail as possible, specifically results of bone marrow tests and details of treatment

Technical Requirements:

Patients will require an internet connection and a smartphone, tablet or laptop/desktop computer with a camera.

This video consultation service is offered via a secure portal from a professional company specialising in NHS video consultation, and confidentiality is of paramount importance.

Video communication

Video communication

How does it work?

A User Guide will be sent to you with the appointment notification.

The appointment will be arranged after receipt of a formal referral from either the GP or local Haematologist, which should contain as much detail as possible, specifically results of bone marrow tests and details of treatment.

The consultation will either be a one-off session, or part of an on-going care, depending on the situation and patient preference, just like the more traditional “shared care” setup.

Make an appointment today!

Send an email to Prof Bowen’s secretary jayne.croft@nhs.net

Patients outside England

NHS funding mandates that for UK patients resident outside England, the local consultant / GP must have agreed funding for the consultation from the local payers (eg Health Boards in Scotland, and equivalent in N. Ireland and Wales), prior to the formal referral to Professor Bowen.

Overseas patients

The video consultation service is available to overseas patients for a relatively small fee.

A formal referral from a local haematologist is preferred, accompanied by details of bone marrow and blood tests, and of treatments received.

These can be sent by email to Professor Bowen’s secretary, jayne.croft@nhs.net

Prior to the consultation a signed document confirming the undertaking to pay the overseas patient fee must be received by Leeds Teaching Hospital. An approximate charge for a single consultation is currently £196; this may vary.

Contact Us:

For any questions, please contact us directly at MDS UK info@mdspatientsupport.org.uk - Tel 020 77337558

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