MDS specialist centres in UK & Ireland
There are a number of UK centres with a specialist interest in treating patients with MDS, some of which are recognised as Centres of Excellence.
You can ask to be referred to these specialist centres for an additional opinion. The referral request can be made via your GP or your local haematologist. These referrals are particularly helpful for the more complex MDS cases, or if you feel that the care or information you're receiving is not sufficient for your needs.
Additional options are sought by many patients across the UK. These are perfectly reasonable requests, given that MDS is a rare and complex disease. Although all haematologists will be familiar with the condition, not all of them will have the specific expertise found in specialist centres.
If you seek an additional opinion at a specialist centre, you will still be treated at your local hospital. Your local haematologist will work together with the specialist to provide you with optimal care. This is called 'Shared care'.
A specialist centre will also provide you with a dedicated Clinical Nurse Specialist - who you will be able to consult between appointments if necessary.
A note about British Society of Haematologists MDS guidelines
The BSH guidelines recommend that all patients who are newly diagnosed with MDS are discussed with a regional or national expert in MDS given that the disease is rare. You are entitled to ask your doctor if they have done this. The NHS also allows you to ask to see a regional or national expert in MDS if you think that this would help you.
London
King’s College Hospital (CoE)
University of London
Prof Ghulam J. Mufti (semi-retired)
Dr Austin Kulasekararaj
Leeds
St. James’s University Hospital (CoE)
St. James’s Institute of Oncology
Dr. Catherine Cargo
Cambridge
MRC Laboratory, Addenbrooke's NHS Trust, Cambridge
Professor Alan Warren
Birmingham
Queen Elizabeth Hospital (CoE)
Prof Charles Craddock, MD
Dr Manoj Raghavan, MD
Oxford
Radcliffe Hospitals and University of Oxford (CoE)
Prof Paresh Vyas
Dr Onima Chowdhury
Bournemouth
The Royal Bournemouth and Christchurch Hospital (CoE)
Dr Catherine Hockings, Consultant Haematologist
Aberdeen, Scotland
Aberdeen Royal Infirmary (CoE)
Dr Dominic Culligan
Cardiff, Wales
University Hospital of Wales (CoE)
Dr Jonathan Kell
Dr Wendy Ingram
Manchester
The Christie, Manchester (CoE)
Dr Dan Wiseman
Nottingham
Nottingham University Hospital
Dr Rohini Radia
Brighton
Brighton and Sussex University
Hospitals NHS Trust
Prof. Tim Chevassut
Hull
Castle Hill Hospital, Cottingham, Hull
Dr Simone Green
Worcester
Worcestershire Acute Hospitals NHS Trust
and Birmingham NHS Foundation Trust
Dr Juliet Mills
Glasgow, Scotland
Beatson West of Scotland Cancer Centre
Dr Mark Drummond
Truro
Royal Cornwall Hospitals NHS Trust, Truro
Dr Bryson Pottinger
Swindon
Great Western Hospitals
NHS Foundation Trust
Dr Alex Sternberg
Northampton
Northampton General Hospital
NHS Trust
Dr Jane Parker
Newcastle
Northern Centre for Cancer Care, Newcastle
Dr Gail Jones
Dublin, Ireland
Tallaght University Hospital, Dublin
Dr Helen Enright, MD
Southampton
University Hospital Southampton NHS Foundation Trust
Dr Chris Dalley
Dr Srinivasan Narayanan
London
St Bartholomew’s Hospital, London
Professor Jamie Cavenagh
Devon & Exeter
Royal Devon and Exeter NHS Trust
Dr Tom Coats, Haematology Consultant
If you'd like more information and advice about MDS, contact us
Postal Address:
MDS UK Patient Support Group
Unit B12
The Fuel Tank
8-12 Creekside,
London
SE8 3DX
Telephone: 020 7733 7558
Email: info@mdspatientsupport.org.uk
or by filling out contact us
Website Enquiries: Please email info@mdspatientsupport.org.uk
for any website enquiries.
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