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For MDS patients who are unable or prefer not to travel to a conventional appointment: one to one video consultations online

Professor David Bowen and Leeds Teaching Hospitals are pleased to announce the start of a new service for patients who would like a specialist MDS consultation but who are unable to, or prefer not to travel to Leeds for a conventional clinic appointment.

This will be a brand new type of NHS service opening for MDS patients, in April 2019, for online clinical consultations with one of the main MDS specialists in the UK, Professor David Bowen, from the MDS Centre of Excellence in Leeds.

Starting date for this service:

Video consultations will be available from April 2nd 2019, generally on Wednesdays but with some flexibility.

Who is it for?

Any MDS patients who would like a specialist MDS consultation but who are unable to, or prefer not to travel to Leeds, or another Centre of Excellence for a conventional clinic appointment.
This service will be very similar to the standard referral request for an “Additional opinion”, or second opinion at an MDS Centre of Excellence.

Prof Bowen: "Patients should have the opportunity to see a true expert in whatever disease they have"

How can you access this?

If interested, just like any conventional referral request, speak to your GP or local haematologist, explaining you would like to have an additional opinion from an MDS expert.

MDS is a rarer disease, and often requires an MDS expert to evaluate the exact sub-type of MDS, or explore and discuss additional treatment options, including clinical trials.

Your haematologist, or GP, will then need to refer via the traditional referral system, to Professor David Bowen, at Leeds Teaching Hospital.
An appointment will be arranged after receipt of a formal referral from either the GP or local Haematologist, which should contain as much detail as possible, specifically results of bone marrow tests and details of treatment

Technical Requirements:

Patients will require an internet connection and a smartphone, tablet or laptop/desktop computer with a camera.

This video consultation service is offered via a secure portal from a professional company specialising in NHS video consultation, and confidentiality is of paramount importance.

Video communication

Video communication

How will it work?

A User Guide will be sent with the appointment notification.

The appointment will be arranged after receipt of a formal referral from either the GP or local Haematologist, which should contain as much detail as possible, specifically results of bone marrow tests and details of treatment.

The consultation will either be a one-off session, or part of an on-going care, depending on the situation and patient preference, just like the more traditional “shared care” setup.

Contact Us:

For any questions, please feel free to contact us directly at MDS UK

info@mdspatientsupport.org.uk

Tel 020 77337558

Register Your Interest:

Become an MDS UK member and select "Video Consultation"

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