New! MDS UK online meetings for patients and carers

It doesn't seem likely that we shall be able to resume face-to-face meetings for a while yet. But we are keen to maintain our services to you, and provide you with all the regular news about MDS, as well as giving you an opportunity to connect to one another virtually.

We know how important patient to patient contact is for everyone.

Hence, we've started organising Zoom meetings for the last couple of weeks. Feedback has been very positive and we were able to resume local group activities, as well as holding nationwide meetings on specific topics.

Join our Online Zoom Meetings

Check the calendar

On the 22nd of July, we had a very informative nationwide meeting on Clinical Trials and Research in MDS & AML During CoVid. Our Guest Speaker was Dr Austin Kulasekararaj, Consultant Haematologist at King's College Hospital.

Forty people attended the meeting, and Dr Kulasekararaj gave an introduction to the subject, tailored to the audience, and addressed patient's questions.

Whatever happens during and after the COVID-19 pandemic, we aim to maintain some virtual meetings, as it has attracted new members, who had not attending face to face meetings previously.

Many patients have already embraced the video meeting call technology Zoom (or something similar) in order to stay in touch with family members during the lockdown.

If you haven't, please contact us. Please also see our guidance on how to use Zoom. If you are a first time user of video call – please don’t worry. The first 15 minutes of each meeting will be set aside to sort out any technical issues.

If you have not contacted the MDS UK Patient Support Group before and would like to receive a full Patient Information Pack, please contact our Main Office.

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