I was diagnosed with MDS (del5q) two years ago, on “watch and wait” until starting treatment in July 2021.
I registered for the MDS Patient Support Group on diagnosis and was impressed by the information and support available.
As a result I was inspired to wonder about how a support group in Scotland might be resurrected.
To this end I volunteered to become an ambassador with a view to raising awareness in Scotland and, thanks to Chris Dugmore’s persuasiveness, I soon found myself on the CIO committee.
The advent of Covid and use of Zoom for educational and support meetings allowed me to consider taking on a bigger role than I had originally planned.
In my working life I was a medical doctor specialising in forensic psychiatry until I retired in 2007 following which I was on the Mental Health Tribunal (Scotland) for 10 years.
I worked all over the UK from Orkney to London, finally settling back in Scotland for the last 30 years of my career.
I now live with my husband in a village in rural Perthshire where (in non covid times) we are very involved in numerous community groups and activities.
We particularly enjoy outdoor pursuits, especially walking, and recently discovered the joy of e-bikes. Our campervan has allowed us some freedom to roam in Scotland during the pandemic.
We have 2 adult children, one in Edinburgh and the other in South Korea.
I hope to raise awareness of MDS Patient Support UK in Scotland and encourage more patients and carers to join the meetings which I have found so helpful.
I also hope to be able to buddy with patients by phone who need more individual support or who are excluded from joining a Zoom
group for any reason.