Our aims

• To provide a networking service through which those newly diagnosed with MDS may share their experience with fellow sufferers.
• To provide a help and advice telephone line 5 days/week
• To organise national patient information meetings with specialist speakers
• To help patients create small regional support group meetings, to meet informally, and hear presentations from nurses and doctors.
• To distribute information and raise awareness of MDS among patients, carers and health care professionals across the UK.
• To provide access to a list of UK consultants, specialising in MDS.
• To develop and maintain a website, providing the latest information on MDS, its diagnosis and treatment options.