Research FOR Patients
-For an informed and empowered opinion-
Have you made your clinical paper accessible yet?
Patient Organisations have a very active role in Harmony, and we are permanently involved in the definition of outcomes for patients and the design of research projects.
At the heart of Harmony is the sharing of big amounts of data from patients with blood cancer from all over Europe.
Watch this video to understand how Big Data can help clinicians to treat blood cancer
The Harmony Alliance aims to develop treatments that are:
- more effective
- have fewer side-effects
- secure a higher quality of life
However the best possible treatment may differ from one person to another. This is partly due to biological differences such as the genetic characteristics of the tumor cells.
By studying big amounts of data, researchers can learn how to predict the development of a particular disease and how certain subgroups of patients will respond to treatment.
This should result in tools that will enable clinicians and doctors to rapidly select the most promising treatment for a particular patient.
How does Harmony ensure data quality, safety and privacy?
The Harmony Alliance has developed very careful data-handling procedures to provide maximum protection of the patients’ privacy, while leaving the data rich enough for meaningful scientific analysis.
Watch this video to understand how Harmony ensures high quality and secure data that will help improve the treatment of blood cancers.