Loading Events
  • This event has passed.
14 Dec 2021

Nationwide MDS Patient Support Meeting 14/12/2021

When is this event:

Date: 14/12/2021
4:30 pm - 6:30 pm


MDS UK Patient Support Group meeting on Zoom

You know we are very involved in shaping and revising research and clinical trials, working with all the MDS experts nationwide, ensuring the patient voice is clear.

The next trial we will help to shape is a completely new concept, which will improve access to trials for typical low-risk MDS patients.

To date, the majority of trials exclude older patients, those with other conditions, and those who may have had other MDS treatment already. In addition, patients have to enrol separately for each trial.

This new trial will help to resolve all these access issues: The idea is to offer novel drugs on a continuous basis, until a really effective one is found for them.

It is called the MDS Platform Trial, developed by Dr Austin Kulasekararaj, Prof David Bowen, Prof Simon Stanworth & Dr John Norrie.

It will be for LOW-RISK MDS, with the aim to delay the need for transfusion, maintain transfusion free status and improve Quality of Life. The group hopes to offer this trial for an early intervention option in low-risk MDS.

Guest speakers: Prof Stanworth, Dr Austin K and, hopefully, Prof Bowen
When: Dec 14, 2021 16:30 to 18.30
Where: Online
This meeting is open to EVERYONE nationwide – we hope many of you will join us!

Please register using this link:

After registering, you will receive a confirmation email containing information about joining the meeting.


MDS UK Main Office - 0207 733 7558
admin1@mdspatientsupport.org.uk - info@mdspatientsupport.org.uk

Free donations by shopping