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21 Jul 2020

Essex and Anglia Region Local Patient Meeting – Online – 21/07/20

When is this event::

Date: July 21
Time:
11:00 am - 1:00 pm

Venue

Online

ESSEX AND ANGLIA REGION MDS SUPPORT GROUP MEETINGS

PATIENT-TO-PATIENT SUPPORT FOR THOSE AFFECTED BY MYELODYSPLASTIC SYNDROMES

When:     Tuesday, 21st July 2020, 11.00 am - 13.00 pm
Where:   Virtual Zoom Call

Meeting Agenda: 

  • Welcome
  • MDS care during lockdown
  • Emerging from lockdown? How do you feel?

Register in advance for this meeting by clicking on link below:
https://us02web.zoom.us/meeting/register/tZwvcu2vrjkrHtJp-o9C1GSd_IZQU82NCK93

After registering, you will receive a confirmation email containing information about joining the meeting.

It doesn't seem likely that we shall be able to resume face-to-face meetings for a while yet.

We still want to maintain our services to you, and provide you with all the regular news about MDS, as well as giving you an opportunity to connect to one another virtually. We know how important patient to patient contact is for everyone.

We've held 2 online/virtual Zoom meetings - one for MDS Patients only and one for MDS Patients and their caregivers/supporters - in order "to test the waters". Feedback has been very positive, and patients who had not been able to attend face-to-face meetings for various reasons were able to participate. Hence, we are now offering online meetings open to all members and carers.

Whatever happens during and after the COVID-19 pandemic, we aim to maintain some virtual meetings, as it has attracted new members, who had not attending face to face meetings previously.

We may, in time, turn those into regional groups too - if they attract sufficient participants. So – if in hope for a proper in person meeting soon, please join the virtual ones for now – and get to know other MDS UK members.

This current meeting is open mainly to all Essex and Anglia local members and their carers, as well as people in the adjacent areas.

We are also planning to provide nationwide meetings with particular topics which you may find of interest. Please let us know if you have any topic in mind.

Many patients have already embraced the video meeting call technology Zoom (or something similar) in order to stay in touch with family members during the lockdown.

If you haven't, please contact us. Please also see our guidance on how to use Zoom. If you are a first time user of video call – please don’t worry. The first 15 minutes of each meeting will be set aside to sort out any technical issues.

MDS UK Main Office
0207 733 7558
info@mdspatientsupport.org.uk

Christine Dugmore
01702 478244
essexgroup@mdspatientsupport.org.uk

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