Tag: support group

Important Update about our Online Patient Meetings

For the time being at least, we are planning to continue meeting on Zoom, rather than face-to-face.   However, we are aware that if you have a hearing impairment, you may have missed registering for our Zoom meetings because you were worried you would not be able to hear what people were saying.   Good […]

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MDS Awareness Day 2016 – Tuesday 25th October

MDS World Awareness Day – Preparations for 2016 October 25th is being marked by a global community of patients, patient groups and professionals supporting people living with MDS as MDS World Awareness Day. We are preparing for MDS Day 2016, Tuesday 25th of October, to make it an exciting day for patients and their families […]

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MDS World Awareness Day – 25th of October 2015

2015 MDS World Awareness Day: Video Stories 25/10/2015 Some of our true champions for MDS awareness have shared their stories with us. Watch their video clips and share them in support of MDS World Awareness Day 2015! Emma Paine: What happens when you need a second transplant? Emma is an MDS patient.  She had a […]

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100 Q&A book on MDS – revised edition

100 Q&A book on MDS – revised edition We have the latest revised edition of the really helpful 100 Questions & Answers book on MDS available from our office – free of charge to patients. Some of you may have been given the initial 2008 edition, which we distributed a few years ago – and […]

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