Contacts in London - 40s/50s
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Contacts in London - 40s/50s
I was diagnosed with MDS a year ago. I am 47 and currently have no symptoms. Looking for contacts with MDS in similar age bracket. Sometimes it would be helpful to share experiences of dealing with diagnosis.
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Re: Contacts in London - 40s/50s
Hi John
I am aged 57 and am an MDS patient, on azacitidine with a view to have a stem cell tranplant in near future.
In early October 2014, I had a routine blood test because I had developed acute Psoriasis and was feeling generally washed-out and suffering night sweats. Within two weeks, I was sat with my wife in the Haematology Department of our local hospital in Exeter feeling pretty scared when the initials MDS were mentioned in connection with my own symptoms.
I am now on my journey towards an SCT with 2 potential stranger donors identified by Kings, London. I have had 6 cycles of Azacitidine.
Thanks to a very supportive employer. I am working part-time [about 50%] and have changed roles. My colleagues have been very understanding and have tried to understand my amateurish explanation of MDS.
I do have a 'story' published on the Forum under News / Patients Stories.
Nigel
I am aged 57 and am an MDS patient, on azacitidine with a view to have a stem cell tranplant in near future.
In early October 2014, I had a routine blood test because I had developed acute Psoriasis and was feeling generally washed-out and suffering night sweats. Within two weeks, I was sat with my wife in the Haematology Department of our local hospital in Exeter feeling pretty scared when the initials MDS were mentioned in connection with my own symptoms.
I am now on my journey towards an SCT with 2 potential stranger donors identified by Kings, London. I have had 6 cycles of Azacitidine.
Thanks to a very supportive employer. I am working part-time [about 50%] and have changed roles. My colleagues have been very understanding and have tried to understand my amateurish explanation of MDS.
I do have a 'story' published on the Forum under News / Patients Stories.
Nigel
Male, Aged 56, Still working, Recent diagnosis, Based nr Exeter
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Re: Contacts in London - 40s/50s
Hi
I'm in London. I'm now 51 and was diagnosed aged 35. Are you aware of the patient support group meetings? That can be a good way of making contact with other local people. Also there is a Facebook page which again is a great source of company for those of us that share the road less traveled.
Hope you make some connections.
Take care
Kes
I'm in London. I'm now 51 and was diagnosed aged 35. Are you aware of the patient support group meetings? That can be a good way of making contact with other local people. Also there is a Facebook page which again is a great source of company for those of us that share the road less traveled.
Hope you make some connections.
Take care
Kes
I was diagnosed initially with RA. Now I'm told it RCMD with hypocellular marrow. It seems I also have a big autoimmune component to my MDS with lots of accompanied joint pain[/color]
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