Sorry, I couldn't figure out any other way to contact you, as Chris suggested. My husband is newly diagnosed with RARS-T And has the gene mutation JAK2. Can you help me with information?
Thanks,
Sharon
For Sophie
Moderator: Steering Committee
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Re: For Sophie
Hello Sharon
GO into section above this on front page :about the forum; and in there is post from Sophie posted in the last couple of days and it gives the e-mail address you can contact her on ( and the phone number i believe ) this may be quicker for you ...
good luck
Janet
GO into section above this on front page :about the forum; and in there is post from Sophie posted in the last couple of days and it gives the e-mail address you can contact her on ( and the phone number i believe ) this may be quicker for you ...
good luck
Janet
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Re: For Sophie
HI Sharon and Janet
Janet - thanks for pointing Sharon in the right direction!! I should have put Sophie's contact details in myself. Here they are just in case:
Tel: 020 7733 7558
Email: mds-uk@mds-foundation.org
Chris
Janet - thanks for pointing Sharon in the right direction!! I should have put Sophie's contact details in myself. Here they are just in case:
Tel: 020 7733 7558
Email: mds-uk@mds-foundation.org
Chris
Chris.Trustee,Patient Support Ambassador (Essex) (F) Age 73 (2023)).Diagnosed in 2008. CMML-1. Normal red cells, low white cells & platelets, slightly raised monocytes. Enlarged spleen. Not had any treatment - active monitoring 6-monthly.
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Re: For Sophie
Thank you both!
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