Hi Jayne, Janet and Chris
Thank you so much for your supportive comments. Yep the Hickman line is a weird innit Jayne, Liz says it reminds her of Startrek characters, leads to plug in!! I was given a sort of small sling affair to support the lines whils the stitches heal.
My brother will no doubt say how the GCSF is affecting him Chris! He is rather forthright with that sort of feedback!!
Seems the transplant consultant will use the drug 'Campath' after transplant to reduce graft v. host disease as it removes t cells, which will be introduced later in the engraftment process! (Got a bit heavy for me at that point!).
Thanks again team and keep on posting!
John xxx
MY STORY AT LAST!!
Moderator: Steering Committee
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Re: MY STORY AT LAST!!
56yrs, diagnosed 2008 MDS - RCMD, neutropenia, anaemia and platelet clotting problem (aggregation). Currently taking Aranesp EPO weekly.
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Re: MY STORY AT LAST!!
Good morning John
engraftment yes it would have got heavy for me at that point you head must be reeling from it all trying to understand and stay calm
i like your wifes logic and being a fan (new generations ) i can picture the alien she may be on about
well john you have a sunny day for it so to speak and i wish you luck hope all starts well
take care Janet
engraftment yes it would have got heavy for me at that point you head must be reeling from it all trying to understand and stay calm
i like your wifes logic and being a fan (new generations ) i can picture the alien she may be on about
well john you have a sunny day for it so to speak and i wish you luck hope all starts well
take care Janet
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Re: MY STORY AT LAST!!
Hi John
Just sending you lots of positive thoughts and to let you know I think about you daily and hope your treatment is going well.
Love Jayne xx
Just sending you lots of positive thoughts and to let you know I think about you daily and hope your treatment is going well.
Love Jayne xx
Jayne
Feb 2011 MDS RCMD. Jan 2012 RAEB.
Feb 2012 - 2 lots of chemo each 4-6 weeks in hospital to destroy leukaemic cells resulting in remission from AML.
July 6 2012 - Stem cell transplant
Doing very well, feel great
Age 43.
Feb 2011 MDS RCMD. Jan 2012 RAEB.
Feb 2012 - 2 lots of chemo each 4-6 weeks in hospital to destroy leukaemic cells resulting in remission from AML.
July 6 2012 - Stem cell transplant
Doing very well, feel great
Age 43.
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Re: MY STORY AT LAST!!
Hi John
How's it going? Are you able to get onto the Internet? I hope that you are not being too incapacitated by the chemo and that any sickness etc is being managed. You must be into your third week by now? Or maybe you have gone home now to let your counts recover?
Best wishes to you and Liz.
Chris
How's it going? Are you able to get onto the Internet? I hope that you are not being too incapacitated by the chemo and that any sickness etc is being managed. You must be into your third week by now? Or maybe you have gone home now to let your counts recover?
Best wishes to you and Liz.
Chris
Chris.Trustee,Patient Support Ambassador (Essex) (F) Age 73 (2023)).Diagnosed in 2008. CMML-1. Normal red cells, low white cells & platelets, slightly raised monocytes. Enlarged spleen. Not had any treatment - active monitoring 6-monthly.
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Re: MY STORY AT LAST!!
Hi Chris (and Jayne)
All going OK thanks, chemo nausea managed very well by staff here in Exeter. Still no sign of neutrophils increasing yet (14 days post chemo) and platelets have been a problem but still have what little hair I had to start with!!
Thanks Jane for the caringbridge tip-off, I have aso set up a journal. You are all welcome to read and leave guestbook messages if you wish.
http://www.caringbridge.org/visit/johnwatson1.
Many thanks for your messages of support, Liz is doing fine thanks Chris, plenty of family support.
Best wishes,
John
All going OK thanks, chemo nausea managed very well by staff here in Exeter. Still no sign of neutrophils increasing yet (14 days post chemo) and platelets have been a problem but still have what little hair I had to start with!!
Thanks Jane for the caringbridge tip-off, I have aso set up a journal. You are all welcome to read and leave guestbook messages if you wish.
http://www.caringbridge.org/visit/johnwatson1.
Many thanks for your messages of support, Liz is doing fine thanks Chris, plenty of family support.
Best wishes,
John
56yrs, diagnosed 2008 MDS - RCMD, neutropenia, anaemia and platelet clotting problem (aggregation). Currently taking Aranesp EPO weekly.
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